Thread: Asthma
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Old April 13th 09, 09:21 PM posted to
Anne Rogers
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Posts: 1,497
Default Asthma

Argh, wish I had your doctor too - When Jessica had ringworm, I had a job
even to get him to look at her leg! He wouldn't believe me, then when I said
I'd been a carer for 10 years, and had seen the very distinctive mark
before, he finally agreed to look. Nightmare! This is the same practice that
when I first went with narcolepsy symptoms (but didn't know what it was)
they wanted to refer me to a psychologist!

Any doctor that doesn't respond to "my child has a rash on it's leg" by
actually looking at it needs to be reported for negligence! We had a
great experience when DS had ringworm, I've no idea how he got it, but
it showed up on the first day of our first holiday with him, so he was
almost 4 months. Neither of us had seen it before so we were pretty
freaked out by the several random yellow and red circles we were seeing.
Fortunately the info booklet in our holiday cottage had a number for a
local doctors surgery and they fitted us in the same day and were very
reassurring and helpful, though they were bemused as to how he got it,
he'd been nowhere near cats and neither of us had any symptoms.

I've learnt over the years that there are techniques for handling
doctors, though obviously they aren't going to work with every doctor,
my big revelation was giving them 2nd chances! Seems like a lot of
people get frustrated when they don't feel the doctor is giving them the
help they need, or grasping how much impact a problem is having on your
life. I was moaning to my HV about this, that I didn't think my GP had
helped at all with something and she encouraged me to just make another
appointment and try again and that was the beginning of a much improved
relationship with that doctor, he pulled out all the stops for me, shame
the rest of the system didn't make that easy for him.

Narcolepsy is notoriously difficult to diagnose, I never complained of
excessive daytime sleepiness as if it were potentially a medical
problem, I always had an excuse for it. When I first got hypnogogic and
hypnopombic hallucinations and sleep paralysis, I didn't link it to
sleep, but simply described them as hallucinations, they were freaking
me out and from the generalists perspective I can see how that would
seem to be a mental health issue, particularly in my case when I was
already being treated for postnatal depression, thankfully the
psychiatrist recognised it as a sleep issue, but that time around the
sleep people screwed up, I was pregnant by the time I saw them, my
childcare arrangements fell through at the last minute, so I had DS with
me, the most junior person, or possibly even a student was the one that
actually saw me and even though I'd been told by the psychiatrist that
I'd need an overnight sleep study done, they decided I didn't as my
symptoms had lessened with pregnancy (that's about the one good thing
about pregnancy for me, less sleep paralysis and hallucinations). I
didn't get diagnosed until we moved to the US.