allergy to mother milk

Anne Rogers wrote:

I'm actually thinking some kind of medical problem is much more likely than
some kind of food intolerance, at this stage I'd be asking the doctor to
refer to a specialist. If the doctor is saying he can't digest some
proteins, you need to know which ones and why. Intolerance and allergy is
not the same as being unable to digest something.

That's what I'm thinking. This is sounding much more serious than
self-futzing with breastmilk, formula, and sugar-water can solve.

Are there incomplete forms of galactosemia?

Michelle
Flutist

I do think you should try everyone else's suggestions, but I don't see
why in the meantime you couldn't ask for some further testing. I have
a friend whose baby was unable to tolerate breastmilk. I cannot
remember the name of the specific disorder (begins with a p!), but the
only thing her baby could eat was an extremely expensive formula that
comes from England. Even now, at the age of almost 4, he can eat very
few solids. Chances are your baby has nothing like that, but there are
tests they can do to find out whild you pursue other avenues.

Leslie

But before you jump through those hoops, I'd have her physically
checked for any problems with his rectum. If the blood is bright red,
it's new, so it's happening relatively close to the exit, right?

Does she have diaper rash?

Yes, he has diaper rash with the yeast infection. That's why we are
also thinking about yeast causing a problem in the colon. However, we
spoke with 3-4 doctors and all thought that it wasn't possible or is
very unlikely... Couldn't find much about a problem like that on the
internet either. Any thoughts / experience on that?

"Irrational Number" wrote in message
ink.net...
wrote:
writes:
: Hi Anita:

: red and green lentils
: whole wheat rice
^^^^^^^^^^^^^^^^
: olive oil
: salt
: vegetables: celery, potato, yam, carrot
: materna multivitamin pill
: barley
: rye bread yeast free

: I think this is everything. If we remember something else will post it.

: no juices, no soy, no dairy product, no margarine.

: Milan

Now, look at the ingredients list on all of these. Especially the rye
bread. It could contain wheat, which is a common problem.

Note also the whole wheat rice above...

I don't think there is any such thing as whole *wheat* rice. I think what he
meant is brown, unrefined rice.
--
Be well, Barbara

"Michelle J. Haines" wrote in message
...
Anne Rogers wrote:

I'm actually thinking some kind of medical problem is much more likely
than some kind of food intolerance, at this stage I'd be asking the
doctor to refer to a specialist. If the doctor is saying he can't digest
some proteins, you need to know which ones and why. Intolerance and
allergy is not the same as being unable to digest something.

That's what I'm thinking. This is sounding much more serious than
self-futzing with breastmilk, formula, and sugar-water can solve.

Are there incomplete forms of galactosemia?

My first thought was galactosemia, actually, but there might be other
similar disorders as well. Did this baby have the PKU test that is commonly
done in the States yet? If not, I think that would be a good place to start
in tracking down the issue.
--
Be well, Barbara

thanks for the hint we are going to see pediatrician today and will ask
him for PDU. We are from Canada, and he had some blood tests done when
he was born but don't know what kind of tests.


Circe wrote:
"Michelle J. Haines" wrote in message
...
Anne Rogers wrote:

I'm actually thinking some kind of medical problem is much more likely
than some kind of food intolerance, at this stage I'd be asking the
doctor to refer to a specialist. If the doctor is saying he can't digest
some proteins, you need to know which ones and why. Intolerance and
allergy is not the same as being unable to digest something.

That's what I'm thinking. This is sounding much more serious than
self-futzing with breastmilk, formula, and sugar-water can solve.

Are there incomplete forms of galactosemia?

My first thought was galactosemia, actually, but there might be other
similar disorders as well. Did this baby have the PKU test that is commonly
done in the States yet? If not, I think that would be a good place to start
in tracking down the issue.
--
Be well, Barbara

My first thought was galactosemia, actually, but there might be other
similar disorders as well. Did this baby have the PKU test that is
commonly done in the States yet? If not, I think that would be a good
place to start in tracking down the issue.

I discarded PKU as my understanding was that it was mostly asymptomatic in
the early days, which is why it is so important to test. But I do think that
a thorough medical exam and testing would be appropriate.

Anne

"Leslie" wrote in message
I do think you should try everyone else's suggestions, but I don't see
why in the meantime you couldn't ask for some further testing. I have
a friend whose baby was unable to tolerate breastmilk. I cannot
remember the name of the specific disorder (begins with a p!), but the
only thing her baby could eat was an extremely expensive formula that
comes from England. Even now, at the age of almost 4, he can eat very
few solids. Chances are your baby has nothing like that, but there are
tests they can do to find out whild you pursue other avenues.

Leslie, would that be PKU phenyketonuria (or something!). I found a really
interesting article on that about a mum who was so determined to get the
best out of breastmilk that they partially breastfed, continually monitoring
the level of whatever it was that was the problem. The baby did really well,
presumably because of all the good stuff in the breastmilk that wouldn't be
in the very restricted formula they would have had.

Anne

thanks for great ideas and leads, we are going to doctor today and I
will discuss all this with him. we will post later today.

Leslie, my wife was eating chicken and then we read that chicken can be
cause of the allergy so we switched to lentils. Any good idea what
protein rich food is the least risky?

Milan

"Anne Rogers" wrote in message
...
My first thought was galactosemia, actually, but there might be other
similar disorders as well. Did this baby have the PKU test that is
commonly done in the States yet? If not, I think that would be a good
place to start in tracking down the issue.

I discarded PKU as my understanding was that it was mostly asymptomatic in
the early days, which is why it is so important to test. But I do think
that a thorough medical exam and testing would be appropriate.

The test typically called the PKU in the States also screens for a number of
other metabolic disorders, as I understand it. I don't know what all of them
are.
--
Be well, Barbara