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Update: No weight gain in 9 mos old
We had our weight check, and my daughter has gained 7 ounces in the past
two weeks! The pediatrician wants to do another weight check in 2 weeks, to keep an eye on things. She's also talking up testing for celiac disease, doing a thyroid check, and something else. I told her that we had a traumatic blood draw when my daughter was not quite 3 months old, so we're going to see what the next two weeks bring. If my daughter continues to have diarrhea (which I think has been due to the antibiotics she's been on, rather than a sign she's having trouble processing gluten) then I'll probably be more agreeable about the blood draw. I didn't give her any formula, just kept nursing her on demand and trying to get higher calorie foods into her. At the weight check, the pediatrician also said that we could give her some cow milk, if we thought that would help. At her age, I see that as yet another replacement for breast milk, and one I don't need to start providing. So, I get another two weeks to stress a bit, although I'm more confident she's fine now. I think her increased activity level coincided with an abrupt growth shift, causing the dramatic curve change for her weight. Thanks for all your support! Leigh |
#2
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Update: No weight gain in 9 mos old
Leigh McCuen wrote:
We had our weight check, and my daughter has gained 7 ounces in the past two weeks! Glad to hear things are on the right track! I hope the trend continues. Thanks for the update. -- Nikki Mama to Hunter (4) and Luke (2) |
#3
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Update: No weight gain in 9 mos old
Leigh McCuen wrote in message ...
We had our weight check, and my daughter has gained 7 ounces in the past two weeks! Great job! That's really good! The pediatrician wants to do another weight check in 2 weeks, to keep an eye on things. She's also talking up testing for celiac disease, doing a thyroid check, and something else. I told her that we had a traumatic blood draw when my daughter was not quite 3 months old, so we're going to see what the next two weeks bring. If my daughter continues to have diarrhea (which I think has been due to the antibiotics she's been on, rather than a sign she's having trouble processing gluten) then I'll probably be more agreeable about the blood draw. Believe me, I know all about traumatic blood draws (last time my daughter [whose blood doesn't clot properly anyway] was admitted to the hospital, they 'blew' a vein in her hand, then finally got the little tube thing in another vein, and it started leaking, so they needed to call in a third nurse just to get a blood sample probably 10% the size of the blood they'd already spilled...and my other daughter was standing there screaming along with her sister), and having been there more times than I care to count, I wanted to let you know that the celiac blood test isn't all that reliable, and there is even disagreement among Dr.s about what the results mean. If your Dr. persists in wanting this test, I'd definitely ask to have a full allergy panel run at the same time, to avoid further tests (many celiac symptoms can be other allergies), and I'd talk to a Ped. GI about the results. Let them know you're willing (if you in fact are) to go gluten free for a couple of weeks, too, to see if there's a difference. In our case, the Ped. thought the blood tests showed that my daughter had celiac disease; The GI she sent us to thought it was not celiac, and we got more tests, then found out the problem was probably milk instead. I'm still in touch with them both following up her response to different foods, a year+ later. Also, celiac is not confirmed by a blood test alone, it takes a biopsy, usually at least 2, actually, and sometimes 3. Which is far scarier than any blood test, I think (they have to be put under). I didn't give her any formula, just kept nursing her on demand and trying to get higher calorie foods into her. At the weight check, the pediatrician also said that we could give her some cow milk, if we thought that would help. At her age, I see that as yet another replacement for breast milk, and one I don't need to start providing. So, I get another two weeks to stress a bit, although I'm more confident she's fine now. I think her increased activity level coincided with an abrupt growth shift, causing the dramatic curve change for her weight. Thanks for all your support! Leigh Sounds like things are going well! Best of luck! Tina. |
#4
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Update: No weight gain in 9 mos old
Tina wrote:
Believe me, I know all about traumatic blood draws (last time my daughter [whose blood doesn't clot properly anyway] was admitted to the hospital, they 'blew' a vein in her hand, then finally got the little tube thing in another vein, and it started leaking, so they needed to call in a third nurse just to get a blood sample probably 10% the size of the blood they'd already spilled...and my other daughter was standing there screaming along with her sister), and having been there more times than I care to count, I wanted to let you know that the celiac blood test isn't all that reliable, and there is even disagreement among Dr.s about what the results mean. What a horrible experience that must have been for you! I can't even imagine. And thanks for giving me that info about the celiac blood test. I'll be quizing the ped. about it before we allow any blood draws. If your Dr. persists in wanting this test, I'd definitely ask to have a full allergy panel run at the same time, to avoid further tests (many celiac symptoms can be other allergies), and I'd talk to a Ped. GI about the results. Let them know you're willing (if you in fact are) to go gluten free for a couple of weeks, too, to see if there's a difference. In our case, the Ped. thought the blood tests showed that my daughter had celiac disease; The GI she sent us to thought it was not celiac, and we got more tests, then found out the problem was probably milk instead. I'm still in touch with them both following up her response to different foods, a year+ later. Also, celiac is not confirmed by a blood test alone, it takes a biopsy, usually at least 2, actually, and sometimes 3. Which is far scarier than any blood test, I think (they have to be put under). I think if we end up testing for celiac, I will ask for a full allergy panel, esp. as I would like to know for sure if she is sensitive to bananas, or if the throwing up after eating banana has been entirely coincidental. I like the suggestion to go gluten free. Since my daughter's breastfeeding, do you think I'd need to go gluten free as well, or would restricting her diet be sufficient? I read up on the biopsy. I can't imagine letting them do that to her. It's terrifying. Ugh. I wish this were easier! Thanks for your input, it's of great help. Leigh |
#5
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Update: No weight gain in 9 mos old
Hi - I hadn't heard that the celiac blood test was unreliable. Rather, it's an indicator and, if the indication is positive, is meant to be followed up with an endoscopy of the (intestine?), which is an out-patient hospital procedure. In the old days, before the blood test, celiac could ONLY be tested via endoscopy. And celiac is WAY under-diagnosed in the US. (It's estimated that as many as 1 in 150 people may have celiac disease, the majority undiagnosed. Mostly in people of European and Middle Eastern extraction.) Be aware that the celiac blood test is not useful unless the patient has been consuming gluten for a while, hence it's NOT useful in infants who haven't yet started on wheat. I'd also recommend a full allergy panel, by the way, if your baby is having gastric trouble. Be sure it's done by an allergist who's experienced with allergy in infants and young children. Most allergists are more experienced with older children and adults. In our metropolitan area, there are only a couple of allergists who were willing to take on my son when he was only 12 months. There's good information on celiac disease all over the web. Just do a google search and read all about it. We have, thus far, escaped celiac, although we'll be re-testing one of my kids if his constant stomach aches don't quit. --Beth Kevles http://web.mit.edu/kevles/www/nomilk.html -- a page for the milk-allergic Disclaimer: Nothing in this message should be construed as medical advice. Please consult with your own medical practicioner. NOTE: No email is read at my MIT address. Use the AOL one if you would like me to reply. |
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