How Thoughtful House and Drs. Wakefield, Krigsman and Jepson Helped My Son

On Tue, 1 Sep 2009 18:47:37 +0100, "john" wrote:


Dr. Wakefield, Dr. Krigsman and Dr. Jepson were the ONLY
physicians with the courage to address the autism/ GI disease and help kids
like mine. While the AAP and the rest of the medical community turned their
backs on our children for fear of uncovering why so many children were
regressing into autism with GI disease, TH opened their doors and actually
treated our kids.

As I understand it Wakefield has no license to practice in Texas. How
could he be treating children?

We got our kids scoped with a GI who was on the phone with Thoughful
house...the GI guy at first wouldn't believe my story...but agreed
thankfully to the procedure. My kids had Hyperplasia, and the measles virus
genome in their guts.

As Unigenetics, set up and funded by lawyers unsuccessfully claiming
for vaccine damage in the UK, closed some years ago and was the only
place which would detect measles virus in the gut (central to Wake
fields thoroughly discredited hypothesis) this seems improbable.

Until we found Thoughtful House...Dr. Krigsman, Dr. Jepson, and Dr.
Wakefield. My son has been under their care for 2.5 years and has made
amazing strides.

Wakefield has no licence to practice, how could the child be "under
his care"?

Andrew Wakefield and all the other doctors
who are helping us are the most caring and thoughtful people who have risked
so much to step up and help our sick children.

Unless Wakefield has recently acquired a Texas license to practice
perhaps someone in the USA should do something about this?

The second anyone start denying the damage that vaccines can cause - I stop
listening.

This sums it up quite well.

"john" wrote in message
...

So just what part of this post had anything to do with you? Hmmmm

Looks like it was a plain old parroting post. Nothing definitive in the
post just conjecture.

August 31, 2009
How Thoughtful House and Drs. Wakefield, Krigsman and Jepson Helped My Son
By Katie Wright

My son Christian would still be living in horrible pain if not for the
wonderful doctors at Thoughtful House. After enduring 2 years of
nightmarish, non-stop diarrhea and traveling all over the country meeting
doctor after doctor who pronounced Christian "autistic but fine" or "he's
autistic, what do you expect?" or "he definitely isn't autistic but we don't
know what's wrong" Christian finally got the medical help he needed at
Thoughtful House. Dr. Wakefield, Dr. Krigsman and Dr. Jepson were the ONLY
physicians with the courage to address the autism/ GI disease and help kids
like mine. While the AAP and the rest of the medical community turned their
backs on our children for fear of uncovering why so many children were
regressing into autism with GI disease, TH opened their doors and actually
treated our kids. This determination came at great personal and professional
cost and I know I speak for so many parents when I saw we are infinitely
grateful.
Katie Wright is a Contributing Editor to Age of Autism. She has two young
boys. Her oldest son, Christian, is severely affected by autism. He
developed normally; smiling, talking, walking; only to lose every skill and
every word by the age of 2 and a half. Upon the advice of medical
professionals Katie and her husband were advised to pursue only high quality
behavioral therapy, speech and OT for Christian. It had no meaningful impact
on Christian until his parents sought help from DAN! doctors who treated the
underlying causes of Christian's descent into autism. Christian has improved
but still has far to go. He has Inflammatory Bowel Disease, the measles
virus in his gut and an immune system akin to a late stage AIDS patient.
Christian does not have a psychiatric disorder. Before autism, Katie Wright
was the Clinical Director of Sexual Assault Crisis Center in Stamford
Connecticut. Katie is proud to serve on the Boards of NAA and SafeMinds.

http://www.ageofautism.com/2009/08/h...ed-my-son.html

Comments
I don't know if we can be middle ground any more....I think we have to
question all the vaccines our kids get, not just the MMR, and we don't know
what reacts with one another (think Michael Jackson here), and, we don't
even know, that spacing them out makes any difference. In the environment of
non trust I have in the whole manufacturing process let alone the business
model of vaccines, the ingredients in them alone, the INTENDED
immunocompromise that follows, I question whether or not we should be so pro
vaccine, or appear to be workable and middle ground, and go to, let's
question ALL of them. I do think that less is more with vaccines, but I
think what's better, for all of us with bent and broken methylation and
healing capitals, and the amounts of toxins in our bodies at present (philip
langren cedar siani NY), not to mention a newborn with no viable immune
quality to fight of the DOSE they give, there is not a safe vaccine (s_).
There is that one child who may handle them, but, I frankly see more than
autism damage in our generation of children...I see the spectrum, from the
dark circles under eyes, the behavior intolerances, and allergies galore, to
full blown neurological collapse in it's many forms, and oft systemically
ruining the liver function, thyroid and the gut.
I don't want one more R and D/stock holder vaccine persons laughing at us,
scorning our children like this. I want a proud army of mothers, to forget
that the mainstream media has any interest in exposing this GIANT SECRET,
and go to the mothers, the very ones who will MAKE THE DECISION, and tell
our stories...this is our only last and true hope left. As for me, that's my
mission anytime someone asks why, or, if I am in a situation to do the
vaccine story missionary work.

If autism is so genetic, my three grandboys would have it...coming from
having two from me...it's just nuts...I see them...they are doing SO well,
no ear infections, no gut problems, TALKING, PLAYING, conversing with their
mothers...this is a testament to me, that TOO MUCH, TOO SOON, is ruining our
children. The mothers had to be vigulent...they had to make sure THEY were
not mercury toxic (and they have the MTHFR..they even had lyme, and had to
treat that...they had to eat organic, nothing MSG or GMO and did home births
and minimally evasive births with no immediate cord clamp or drugs. This is
what WE have to do, to cirumvent our world and the way it damages our
children.

I very sure, that if we don't stop this misinformation, and spread our own
truths amongst mother to mother, we will continue seeing kids being damaged.

We got our kids scoped with a GI who was on the phone with Thoughful
house...the GI guy at first wouldn't believe my story...but agreed
thankfully to the procedure. My kids had Hyperplasia, and the measles virus
genome in their guts. They also had Lyme spirochetes (oft not thought of) as
another ocntributor to SIBO. Treating that, and getting certain enzymes and
protein rich meals made my kids sleep through the night, have less seizures
in one child, and treating the infections with monolaurin, antivirals, and
antibacterials for the lyme, also helped them tremendously. Since they were
OLDER in their teens at that time, I was unable to get them ALL THE WAY
BACK, but if I didn't, I would have children going psychotic, loosing bowel
control, and thoughts of me not dealing with it, and having to put them in
an institution. Thoughtful house saved my kids, and that is what should have
been told last night.

Posted by: Kathy Blanco | August 31, 2009 at 12:31 PM

Ditto to what Katie said.
My son received his MMR booster at age 5 (why I allowed that to happen I
don't know, it's a decision I GREATLY regret), he regressed immediately
after the vaccination and within 6 months he went from being completely
potty trained to completely bowel incontinent. We saw doctor after doctor
and all we heard was it's behavioral due to autism spectrum disorder. One GI
specialist after 18 months of seeing my son determined that 'until he had a
developmental epiphany and chose to oblige to normal toileting protocol he
would continue to be incontinent'. That's right, blame having diarrhea 5-6
daily on my son...it's all behavioral, he's acting out for attention. He
then went on to look my son (8 yrs. old at the time)in the eyes and told him
"If you don't stop pooping your pants I'm hooking you to a bag for the rest
of your life to poop in, maybe then you'll decide to act better." This is
the type of treatment that we are receiving from these 'specialists'. Nobody
to listen, nobody that gives a **** that our kids are suffering on a daily
basic.
Until we found Thoughtful House...Dr. Krigsman, Dr. Jepson, and Dr.
Wakefield. My son has been under their care for 2.5 years and has made
amazing strides. My son's pillcam showed some of the worst GI damage Dr.
Krigsman had seen. He was diagnosed with Autistic Enterocolitis (and screw
those that don't believe this disease exists. I offered many a time to those
that question it the opportunity to come do my laundry for me and THEN tell
me it doesn't exist). With care under these doctors the disease is becoming
more manageable. He went from up to 3 accidents a DAY for 5 YEARS to now
only 3-4 accidents a month. So while he is not completely in remission he is
getting closer. These doctors know what they are doing. They stand tall in
the face of adversity and speak LOUD and CLEAR that our children are sick.
Believe it.
Posted by: Kecia | August 31, 2009 at 11:14 AM

I get so damned enraged at this coverup. It is just infuriating what they've
done to our children and continue to hold their pompous rich heads up
slanting and twisting this ... Andrew Wakefield and all the other doctors
who are helping us are the most caring and thoughtful people who have risked
so much to step up and help our sick children. There will be a day that the
truth will come out and they will be recognized by ALL not just us.
Just holding my breath to find out what damage the addition of the swine flu
will do to more children ... certainly not mine.

Posted by: Kathy | August 31, 2009 at 10:24 AM

I think the worst aspect of last night's show was that there was no message
of hope.
Thoughtful House and the other DAN! Drs in this country are doing amazing
work with our children. If we were all being duped there would be parents
lined up to tell the story of how they were conned out of thousands of
dollars but this is not the case.

How the producers could go to Thoughtful House and only report on one
patient,t in whom doctor Krigsman found not much, represents an ubalanced
view of the work Thoughtful House is doing. To tell the story of recovery
would have completely shifted the tone of their show. It would have shifted
much more credibility toward Dr. Wakefield and put greater doubt on Deer and
Offits perspective.

Posted by: Pamela | August 31, 2009 at 09:24 AM

Katie, last night's report must be so frustrating to you. You had to sit
there and watch the company you grew up with, NBC, give little credit to
what your family has been through. I wonder what your Dad says about last
night's report. Telling your story shows EVERYONE that there is WAY more to
this story and for that I thank you!!!
Posted by: kim | August 31, 2009 at 09:21 AM

Thank you Katie, as usual!
And Angela, I completely agree with you. I was so disappointed in Matt
Lauer. The show was incredibly biased and slanted. He made parents look like
horrible people out to put their children through ANYTHING to satisfy their
belief of what is wrong. He should have hit harder on the fact that parents
are trying to relieve their children's pain. Something ANY parent would
do!!!I was especially disgusted with the lack of following comment to the
statement put forth about parents not knowing the science. There are NO
parents who know and understand the science more than parents of vaccine
injured children. I wish that we could see all the footage that was edited.
Is it possible to get the unedited transcripts of the show? And how nice it
would have been for David Kirby to have been invited to counter the fact the
Brian Deer was allowed to have a say! And certainly his conflicts of
interest were NEVER brought to light.
Biased bast&%$#!!!!!!!

Posted by: kathleen | August 31, 2009 at 08:45 AM

Thanks so much for continuing to write. It is maddening to listen to all the
spin from those who don't live our lives. Whether it is the neurodiversity
crowd or pundits on TV: you were NOT there with our children.
My son, who was developing in a mostly typical manner, lost his ability to
walk and talk in the TWO days following a routine vaccine appointment (and
various jabs) at 15 months.

The second anyone start denying the damage that vaccines can cause - I stop
listening. Your message has lost me, when you deny my son's experience.

Posted by: LivingWithPDD | August 31, 2009 at 08:32 AM

Katie, as always, your powerful way of telling your personal story touches
us all.



Posted by: Deb O. | August 31, 2009 at 08:13 AM

Katie, as always, thank you for being braved enough to share your and
Christian's story. I'd like to see this post on the Autism Speak's news page
on their site. More people need real help for their sick kids.
You're a powerful addition to Age of Autism.

Thank you, friend.

Kim

Posted by: Stagmom | August 31, 2009 at 08:01 AM

Why didn't Dateline interview more parents from Thoughtful House - i.e., the
ones who have made significant progress? And did you notice that they gave
short shrift to the "after-story" of the family they did interview? I wanted
to see more video of that child in the pool!
The "interview" was so obviously slanted it was disgusting and insulting to
one's intelligence.

And why didn't they include a middle-ground - i.e., parents who want to
space out vaccines and not "rush" out to get 9 shots in one day?

And why didn't they interview parents like me, whose child is not autistic
but has weird auto-immune and visual problems? Or my sister's child who came
down with Type 1 diabetes AT SIX YEARS OLD? Or my other sister's child with
severe asthma?

Why didn't they interview some pediatricians and ask them "back in the 90's
and early 2000's, did you advise parents not to vaccinate when their
children were sick?" My ped NEVER did - my son had vaccines a week after
he'd been extremely ill in the hospital! I recently got a calendar from my
insurance company trumpeting the benefit of vaccines with a little * -
"don't give when sick." Hmmmm.

And didn't you love when Offit bragged about voting against the smallpox
vax? The first thought in my mind was "no wonder, since you don't own the
patent to that one."

I will never watch Matt Lauer again. What a boob and a patsy.

Posted by: Angela | August 31, 2009 at 07:07 AM

Thoughtful House's response to NBC Broadcast:
http://www.thoughtfulhouse.org/newsletters/2009-08a.pdf


A Statement from Thoughtful House Center for Children
August 31, 2009
NBC aired a special Dateline, “A Dose of Controversy,” on Sunday, August 30,
2009. All of us
at Thoughtful House would like to thank NBC, Matt Lauer, Ami Schmitz, and
the staff at
Dateline for their hard work in relating a complicated story.

Autism is a challenging disorder that has been ignored and misunderstood for
too long.
Issues of causation and treatment are rarely discussed in depth for fear
people won’t
understand or pay attention long enough to learn something. This broadcast
was the first
time a network has taken the time to address some of these difficult
questions, and
attempted to deal with complex answers; answers that can be impossible to
put into sound
bites or easy black-and-white comments.

Dr. Bernadine Healy, former head of the National Institutes of Health and
current member
of the Institute of Medicine, provided an informed perspective by calling
for more research
to answer these questions. NBC features more of her interview, with great
advice for
parents, on their website (a link is provided on the Thoughtful House
website).

We are aware of the time limitations in a news broadcast of this nature;
inevitably, crucial
questions go unanswered and important facts are omitted. Quick answers and
segues leave
questions open, and can even lead to misunderstanding.

Among the most crucial incorrect statements were that “(experts) have taken
this study
and blown it to bits…that despite studies showing otherwise…Dr. Wakefield
insists autism
and bowel disease are linked…” This is in fact not the case, and NBC was
given the correct
information in great detail. Five separate studies in five countries have
confirmed the
presence of a novel bowel disease in children with autism. Additional
publications
confirming these findings are in process. This hypothesis was the crux of
the 1998 Lancet
paper, as well as several subsequent publications by Dr. Wakefield.

Additionally, the Danish and Finnish studies that were referred to, with NBC
stating that
“much larger studies showed absolutely no link [to MMR]” were presented as
if they had
not garnered their own share of criticism and debate. In fact, these studies
have been
reviewed by other scientists in depth and found to be lacking. And as Dr.
Healy points out,
the number of children involved in these studies might not have been
substantial enough to
answer the question of a possible link.

Dr. Paul Offit (a frequent media spokesperson for the current vaccine
schedule and
champion of stopping research into vaccine safety and autism) was asked a
relevant
question about his conflict of interests. While finally acknowledging he has
made millions
and millions from the development of vaccinations, what Dr. Offit failed to
disclose in his
answer is that he has been a consultant for the pharmaceutical giant Merck,
a manufacturer
of the MMR vaccine. While serving as a consultant is not unusual or wrong,
his failure to
disclose this when answering a question about potential conflicts of
interest is misleading
in the extreme. He is actually guilty of the very thing that Dr. Wakefield
has been accused
of. (Note that Dr. Wakefield provided NBC with numerous documents proving he
was
innocent of this charge, and that he had declared any possible conflict of
interest in a timely
manner throughout the course of his career.) We certainly do not condone any
threats or
attacks against anyone, including Dr. Offit (we have been on the receiving
end of these
threats and accusations ourselves); however, we urge Dr. Offit to be prompt
and thorough
in disclosing his motives and conflicts.

As for Brian Deer, much has been written and said about his crusade against
Dr. Wakefield.
His lies, conflation of facts, and distortions of truth are documented and
will continue to be
revealed as more facts emerge. The biggest omission in the broadcast
concerning Mr. Deer
is the clear evidence that the entire General Medical Council investigation
is based on a
complaint he filed himself. A reporter creating the news is a story in
itself, and one that will
continue to be discussed as the GMC and the Press Complaints Commission in
the UK
review the facts at hand.

While we sympathize with pediatricians who must answer more questions from
betterinformed
parents, we disagree with Mr. Lauer’s assessment that it is the
pediatricians who
“are dealing with the collateral damage.” We see mountains of collateral
damage every day
in our waiting rooms, our community, and our homes. Thoughtful House will
not stop until
we have the answers needed to help those who are already affected and are
armed with the
science to stop even one more child from facing the difficulties and pain
that autism can
present.

As Dr. Wakefield said in his NBC interview, the work of the many who work
with
Thoughtful House, through clinical practices and research, will continue. As
the health and
lives of children continue to improve and the research into causation and
best courses of
treatment moves forward, we remain committed to follow our mission of
fighting for the
recovery of children with autism and developmental disorders.

We hope this broadcast will open a productive dialogue on the challenges of
autism and the
treatment that will help them reach their fullest potential. The issue of
vaccine safety must
become a priority for those who have been tasked with protecting our
children. We hope
that science will prevail over profit and policy and that this research will
be supported in
order to answer these questions once and for all. All children deserve
nothing less.

Anissa Ryland
Director of Operations
Thoughtful House Center for Children