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Chris's Seizures
Julie, Chris has had two MRI's and two EEG's and will probably have a PET scan soon. He has the same as your nephew. His fortunately are not convulsive but all the other signs, lip smacking, unpurposeful hand motions, sees stars or colors, migraine headaches afterwards, vomiting. They generally don't last more than 10-15 seconds but can come in clusters, ie, every hour or two. The worst was 5 in a row every hour! He is on Carbatrol 400 mg 2x daily and it works - so far. We've had to up the meds and he is currently under the care of a ped neurologist at Children's here. The old neurologist thought at PET scan was in order as the MRI showed a brain bruise. Something he was born with - from birth - who knows, but it's there. The key is to make the bruise non-viable, he felt even one seizure in 6 months was too much. He likes the Carbatrol as it's the least side effect med on the market. Chris seems to handle the pill taking ok and seems to know that the meds help, at least a bit. If I can be of more help, please e-mail me directly. I feel sorry for your SIL or Sister 'cause it's a tough position to be in, one feels like they can't do anything. There is a great book on the market that our original neurologist in Minnesota asked us to read, it's on Parenting children with seizures or something like that. It gives a ton of information about the problem. Good luck. |
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Chris's Seizures
I personally would not allow any more vaccines until discovery of the
seizure cause. These are often associated with Autism Spectrum Disorders (ASD) which many believe to be triggered by the MERCURY (Thimerosal) in vaccines. One of the possible culprits is the HEP-B given at birth, prior to the babies blood brain barrier being formed, allowing the MERCURY free access to the BRAIN. Search for the U of CALGARY video of a brain neuron being fried by THIMEROSAL - perhaps this views as a brain bruise on a scan. Some parents have been accused of child abuse because the childs brain has effects from vaccines resembling abuse. YURKO is one of them. (do a google search) www.factsformedia.com www.scvs.intranets.com The KETOGENIC DIET has helped some kids with seizure disorders. My 7 year old had a reaction to his 1 yr MMR and now has AUTISM - but he was born perfectly healthy and developed normally up to that point. BTW, HEP-B is worse than useless, unless your baby is going to be sexually promiscuous or sharing I.V. drug needles on the street. READ AND BE INFORMED - MAKE YOUR OWN DECISION. YOUR BABY IS COUNTING ON YOU. .. Best Wishes. The old neurologist thought at PET scan was in order as the MRI showed a brain bruise. Something he was born with - from birth - who knows, but it's there. The key is to make the bruise non-viable, he felt even one seizure in 6 months was too much. He likes the Carbatrol as it's the least side effect med on the market. Chris seems to handle the pill taking ok and seems to know that the meds help, at least a bit. If I can be of more help, please e-mail me directly. I feel sorry for your SIL or Sister 'cause it's a tough position to be in, one feels like they can't do anything. There is a great book on the market that our original neurologist in Minnesota asked us to read, it's on Parenting children with seizures or something like that. It gives a ton of information about the problem. Special Needs Community Calendar - LA www.scvs.intranets.com www.factsformedia.com |
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Chris's Seizures
Sorry Shirley you got bothered by that last e-mail - but the person
mentioned the KETOGENIC DIET which I just watched a program about this recently (pretty sure it was on NBC Dateline) and it supposedly produced great results for kids with epilepsy/seizure disorders. Some even stopped taking the meds all together - Good luck. MG "Shirley M...have a goodaa \\;-\)" wrote in message news:LgUVa.20181$uu5.2825@sccrnsc04... I'm not going to start a war about his but sorry, I have friends very good friends who suffered from the polio disease!!!! One just died a few years ago because it comes back in middle age and continues crippling until the body just stops, I remember vividly mom telling me about people dying from the lack of tetanus shots (farm accidents stepping on rusty things), my mom almost dying from Rubella because I gave it to her - luckily she pulled through, etc, etc. You can do whatever you like with your child. My child does not have ADS the the brain bruise is just that, probably from the forceps or pushing for 3 hours!!!!! Get all the facts before you write something you have no clue about! Shirley wrote in message ... I personally would not allow any more vaccines until discovery of the seizure cause. These are often associated with Autism Spectrum Disorders (ASD) which many believe to be triggered by the MERCURY (Thimerosal) in vaccines. One of the possible culprits is the HEP-B given at birth, prior to the babies blood brain barrier being formed, allowing the MERCURY free access to the BRAIN. Search for the U of CALGARY video of a brain neuron being fried by THIMEROSAL - perhaps this views as a brain bruise on a scan. Some parents have been accused of child abuse because the childs brain has effects from vaccines resembling abuse. YURKO is one of them. (do a search) www.factsformedia.com www.scvs.intranets.com The KETOGENIC DIET has helped some kids with seizure disorders. My 7 year old had a reaction to his 1 yr MMR and now has AUTISM - but he was born perfectly healthy and developed normally up to that point. BTW, HEP-B is worse than useless, unless your baby is going to be sexually promiscuous or sharing I.V. drug needles on the street. READ AND BE INFORMED - MAKE YOUR OWN DECISION. YOUR BABY IS COUNTING ON YOU. . Best Wishes. The old neurologist thought at PET scan was in order as the MRI showed a brain bruise. Something he was born with - from birth - who knows, but it's there. The key is to make the bruise non-viable, he felt even one seizure in 6 months was too much. He likes the Carbatrol as it's the least side effect med on the market. Chris seems to handle the pill taking ok and seems to know that the meds help, at least a bit. If I can be of more help, please e-mail me directly. I feel sorry for your SIL or Sister 'cause it's a tough position to be in, one feels like they can't do anything. There is a great book on the market that our original neurologist in Minnesota asked us to read, it's on Parenting children with seizures or something like that. It gives a ton of information about the problem. Special Needs Community Calendar - LA www.scvs.intranets.com www.factsformedia.com |
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