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misc.kids FAQ on Prenatal Testing - Overview and Personal Stories
----------------------------------------- Anonymous response 3: I had three ultrasounds, mostly because my ob/gyn is an ultrasonographer. None of the ultrasounds caught that my daughter is missing her left arm below the elbow from amniotic banding. I am glad I didn't know, because I would have worried that the missing hand&arm was just the tip of the iceberg, and that she had a whole bunch of other things wrong with her. I have been told that it is actually more common for a distal limb defect to be one part of a larger genetic problem, than for it to be an isolated problem. Amniotic banding occurs in about 1 every 5,000 to 10,000 births. I assume you are familiar with this--if not, email me and I will send an explanation. dd#2 has this. It is NOT CONNECTED with anything else according to recent researching. It is not thought to be genetic (chance of having it if someone in your family has it is not increased) and there are no other problems connected with it. They do not know why it occurs, but think it might be caused by a blood clot in the developing limb, or a band of amniotic fluid stopping the arm from developing properly. It is more common in girls, on the left side, and most common to be between the elbow and the wrist. Leg defects also occur but are rarer. If you want to know more you can look at the information on the charity REACH. (I think the website is www.reach.org.uk) The defect can vary from the entire arm missing to shortened/absent fingers. This for me was found at the 20 week scan, and although traumatic at the time, it meant when she was born we'd come to terms with it and could just rejoice in our beautiful baby. Debbie In any future pregnancies, I plan on having a level 2 US, just for peace of mind. I'm not worried about this problem repeating itself, becauseI consider it to be a minor one. I'm more worried about something else being wrong. Once you have a baby who is not textbook perfect, it makes you feel very vulnerable. You no longer have that "it could never happen to me" safe feeling. It is as if the door to birth defect city has been opened, and now anything could happen. ----------------------------------------- |
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