New Again

Hi everyone. It's been awhile. Well 3 years since I last posted. Lots
have been going on in our lives. Googled groups with my name and found
you again so, I decided to join back up. Hope things are going great
with everyone.

ryligirl wrote:
Hi everyone. It's been awhile. Well 3 years since I last posted. Lots
have been going on in our lives. Googled groups with my name and found
you again so, I decided to join back up. Hope things are going great
with everyone.

Hello and welcome back, I myself do not remember reading you, although
I had been lurking back then. Could you give me a brief intro ?

I'm Bev I have a soon to be 25 year old daughter that will be
graduating in December from the Art Institute in San Francisco and a
just turned 19 year old daughter living with me, she has a mental
health diagnosis, a soon to be three year old daughter that I adore
that lives with us part time and a soon to be nuther baby daughter due
in Feb ! We are quite busy day to day around here........

Bev

"Bev" wrote in message
oups.com...

ryligirl wrote:
Hi everyone. It's been awhile. Well 3 years since I last posted. Lots
have been going on in our lives. Googled groups with my name and found
you again so, I decided to join back up. Hope things are going great
with everyone.

Hello and welcome back, I myself do not remember reading you, although
I had been lurking back then. Could you give me a brief intro ?

I'm Bev I have a soon to be 25 year old daughter that will be
graduating in December from the Art Institute in San Francisco and a
just turned 19 year old daughter living with me, she has a mental
health diagnosis, a soon to be three year old daughter that I adore
that lives with us part time and a soon to be nuther baby daughter due
in Feb ! We are quite busy day to day around here........

Bev

I'm gonna piggyback on Bev, as I also don't think I remember you either...
Then again, my brain just isn't what it used to be lately!
But, anyways... Things have been pretty good over here lately. Some days
good, other days not so good. Generally, though, it's been alright.
Welcome back, anyways, although I still can't remember you from 3 years ago,
but once I think about it, I have enough trouble remembering what happened 3
hours ago, nevermind 3 years ago!

Well, my name is Jennifer and I have a 5 year old daughter Ryli.
However, back then her name was spelled Rylee. I had it changed. We
live here in London ON, Canada. Ryli has been in and out of the
hospital since she was born. I believe the last time I posted is when
she was going in to Sick Kids Hospital in Toronto. I had to
dissconnect my internet so I could save the money for her.

Ryli has had tests run for Porphyria type AIP. They have come back
slightly possitive, but a specialist in Montreal has ruled it out.
Good for us. Ryli is still having problems and her specialist here
thinks her bowel is swallowing itself or is twisting or knotting up.
Every time Ryli is in pain, we have to rush her to the hospital cus
surgery is the only way to fix it. But, most of the time, by the time
we get there, either the pain is gone or they can't get her in fast
enough for x-ray and ultrasound to prove that this is what's going on
cus she's vomiting and not stable. Also, he has put her on a trial
period for this drug for Stomach Migrains. This is what I believe she
has. She's been on the drug for over a week and so far, no pains.
Which means no vomiting, which means no dehydration and no more
hospital stays. Her pains have been so severe in the past that she has
vomited herself to dehydration and hospitalization.

So, this is what we're going through right now. I had to quit my job
cus we were at the hospital so much. But, Ryli is in school. Every
other day. But, I don't send her if she wakes up with pain. Even if
it's mild and has only lasted 5 minutes.

Other than that, everything else is going good. And, I hope to get
reconnected with all of you once again.
ryligirl wrote:
Hi everyone. It's been awhile. Well 3 years since I last posted. Lots
have been going on in our lives. Googled groups with my name and found
you again so, I decided to join back up. Hope things are going great
with everyone.

"ryligirl" wrote in message
ups.com...
Well, my name is Jennifer and I have a 5 year old daughter Ryli.
However, back then her name was spelled Rylee. I had it changed. We
live here in London ON, Canada. Ryli has been in and out of the
hospital since she was born. I believe the last time I posted is when
she was going in to Sick Kids Hospital in Toronto. I had to
dissconnect my internet so I could save the money for her.

Hm... Still not ringing any bells for me, but that's alright!
One good thing... The Children's Hospital in TO is fantastic, as far as
hospitals go (I am NOT a fan of doctors and hospitals and all that)

Ryli has had tests run for Porphyria type AIP. They have come back
slightly possitive, but a specialist in Montreal has ruled it out.
Good for us. Ryli is still having problems and her specialist here
thinks her bowel is swallowing itself or is twisting or knotting up.
Every time Ryli is in pain, we have to rush her to the hospital cus
surgery is the only way to fix it. But, most of the time, by the time
we get there, either the pain is gone or they can't get her in fast
enough for x-ray and ultrasound to prove that this is what's going on
cus she's vomiting and not stable. Also, he has put her on a trial
period for this drug for Stomach Migrains. This is what I believe she
has. She's been on the drug for over a week and so far, no pains.
Which means no vomiting, which means no dehydration and no more
hospital stays. Her pains have been so severe in the past that she has
vomited herself to dehydration and hospitalization.

Yikes! Poor girl! I can't imagine how that would be to deal with - for
both you and her.
I was all in a tizzy and running around like a complete moron on the one
occasion B was hospitialized... I couldn't even drive (given the
circumstances for the hospital and the kid and all that) and even the time
not long ago that he smashed his noggin wide open again on his operation
spot and I had to rush him to the doctor, I realized I really don't handle
emergency situations AT ALL.
At least, though, what she's on seems to be helping her and she's even able
to be in school!

So, this is what we're going through right now. I had to quit my job
cus we were at the hospital so much. But, Ryli is in school. Every
other day. But, I don't send her if she wakes up with pain. Even if
it's mild and has only lasted 5 minutes.

Aww... Poor kid, and so young. She must be a tough little girl! (And you
too)
I'm actually not even sure what "Porphyria type AIP" is, but, hopefully this
new medication she's on will help!

Other than that, everything else is going good. And, I hope to get
reconnected with all of you once again.
ryligirl wrote:
Hi everyone. It's been awhile. Well 3 years since I last posted. Lots
have been going on in our lives. Googled groups with my name and found
you again so, I decided to join back up. Hope things are going great
with everyone.

if you go back to around june 2003, you'll see some of my posts. i
remember steveb and keith if that helps.

ryligirl wrote:
Well, my name is Jennifer and I have a 5 year old daughter Ryli.
However, back then her name was spelled Rylee. I had it changed. We
live here in London ON, Canada. Ryli has been in and out of the
hospital since she was born. I believe the last time I posted is when
she was going in to Sick Kids Hospital in Toronto. I had to
dissconnect my internet so I could save the money for her.

Ryli has had tests run for Porphyria type AIP. They have come back
slightly possitive, but a specialist in Montreal has ruled it out.
Good for us. Ryli is still having problems and her specialist here
thinks her bowel is swallowing itself or is twisting or knotting up.
Every time Ryli is in pain, we have to rush her to the hospital cus
surgery is the only way to fix it. But, most of the time, by the time
we get there, either the pain is gone or they can't get her in fast
enough for x-ray and ultrasound to prove that this is what's going on
cus she's vomiting and not stable. Also, he has put her on a trial
period for this drug for Stomach Migrains. This is what I believe she
has. She's been on the drug for over a week and so far, no pains.
Which means no vomiting, which means no dehydration and no more
hospital stays. Her pains have been so severe in the past that she has
vomited herself to dehydration and hospitalization.

So, this is what we're going through right now. I had to quit my job
cus we were at the hospital so much. But, Ryli is in school. Every
other day. But, I don't send her if she wakes up with pain. Even if
it's mild and has only lasted 5 minutes.

Other than that, everything else is going good. And, I hope to get
reconnected with all of you once again.
ryligirl wrote:
Hi everyone. It's been awhile. Well 3 years since I last posted. Lots
have been going on in our lives. Googled groups with my name and found
you again so, I decided to join back up. Hope things are going great
with everyone.

Hello Jennifer,

So sorry to hear about your little ones illness. I imagine it has been
quite stressful and scary at times. How frustrating it must be to be
only moments from being able to have a corrective surgery. I hope this
new medication she is taking continues to keep her pain free. I just
hate to hear of a child suffering like that.Take care of yourself , you
are a special mom, remember to take special care of you!
hugs for you both,
Bev