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#1
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It's a miracle !!!!!
Excuse me while I rant a little.......
I am so so fed up and sick and tired of working through a system that is just plain sicker than its clients. My daughter and I have suffered through enough now. Where does a parent go for help? "the system" and this system of doctors and organisations and hospitals and government agencies,county agencies, schools, law enforcement , juvenile probation,that are all a part of this "mental health system" that we have been involved with for a solid four years now,I have followed my child through some of the hardest learning experiences a child would ever have to go through,Sometimes shielding her from a system I myself do not have much trust in. She turned 18 "Ya know that magical age" The one where children become "adults" yeah that age where This system I am refering to also finds this magical occurance of turning 18 years old as an instant cure for diagnosis'of bipolar, intermittent explosive disorder, oppositional defiant disorder,learning disabled, monocular vision,along with a few other things, all not a reason for my daughter to collect her SSI ! For four years ahhh o.k. three, took 'em a year to decide eligibility ,this has been the reason she recieved the SSI, now they say she can work, o.k. yeah she may be able to, but certainly not without vocational rehabilitation and guidance. It is making me nuts anymore, dealing with all this. She has finally started showing such wonderful improvement and is going back to H.S after we get through the IEP meeting, to obtain her diploma, GED is not appropriate for her because of the learning disabilities.I have put in an appeal for her on the SSI and have obtained an aplication for the vocational rehabilitation program for her, what part of "she has not been open to any of this before and now that she is " don't "they" understand? They just wanna push push push her stress level, stress triggers her episodes and maybe the person making these decisions needs to live with her for a month or two. Anyway If you read me thanks , not looking for sympathy or gold medals,venting feels good,I needed to lower -my- stress level to get on with this day. I see that most of you are doing o.k. I was very relieved "Rita" just tossled yer hair a little in the end of it all "Houston",In my "Jersey girl " slang "dat wuz f'n scary"! Hello everybody! Bev |
#2
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snipped my rant
Kate wrote: I don't know what to say other than, yeah. You're right. It isn't much of a system and it sure isn't designed to make it easy to apply. Bev wrote: Ugh...I can understand that they need to watch for fraud and what not, but this is a kid that just tuned 18 what less than a month ago, and boom "go to work" is what they have to say. Heck she dropped out of school the beggining of the school year because of her issues making social situations a free for all. She is trying to transition into learning to function with these issues in a working environment, and in social situations, It is freakin' hard enough for young adults without "Issues" to learn to become financially independant of their parents. Kate wrote: For what it's worth, keep fighting for what your daughter needs. Bev wrote: You know it is worth a lot ! Thanks knowing and acknowledging the fight. Some people have no idea what this is like. Kate wrote: How'd things go with your other daughter? Bev wrote: My other and oldest daughter did walk the walk and talk the talk while I was there. I knew better than to do it all for her, so I did more encouraging and supporting her to make appointments and helped find places that could maybe help her with the financial no insurance thing.It was a short week , I helped her sign out of school for a quarter ( but there are still things undone !) Medical leave needs paperwork ! Things she was supposed to work on after I left have been lagging. She is starting to talk crap again and I am telling her to just go to the ER and she keeps saying I do not have the money ! I tell her she does not need money to go to the ER and let what is going on known, they can and will find her the financial medical help she needs if they want to get paid , but that they will not turn her away.I am at a loss , and if I was smarter , and knew then what I do now, I would have taken her in kicking and screaming "but I have no medical insurance !" I thought she was stable enough at the point I left, to follow through. I don't know what I am gonna do but I have been thinking ...If I have to go back out there It's gonna be from plane to Hospital ER. She is having such mood swings it looks bipolar ?From a Happy camper to I am too tired ,all I wanna do is sleep. She got her monthly while I was out there and I kinda thought ah ha so that is why she had sounded so " In Crisis" just before I decided I needed to go out there. Then she gave me the little "thank god I thought I might be pregnant" Which made me swallow my tongue! Them there is this Boyfriend about a year or so now her "First" well he is a nut case . He makes her miserable, does not support her in anything, will not include her in his outings with "friends" many of them are female. Makes plans to do things with her then changes his mind . I see it as totally abusive and very unhealthy and have tried and tried to tell her she needs to let him go , hit the pike Mike ! ( his name is Wes) . So ugh ugh ugh argh argh and big scream ! I can not find enough time in a day to cover everybody , I am torn in too many directions am trying to find a job again, have my sister living with us now ( very sick) it is that time and I had made this decision a very long time ago. So what do I do ? I registered for online friggen school and my classes start Oct 3rd I really want to do this for me darn it and I feel scared now that I bit off too big a bite. Sorry I went off on a tangent and off topic of my other daughter, she was doing alright until she went and thought she needed a relationship damn it ! I wish she had waited 'till she was done with school at least, now her whole world seems to be spinning out of control.........Mari and I are heading for Long Island to visit Sue S and Patty from GG ( remember her?) I need to get outta here for a little. Bev |
#3
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"Bev" wrote in message ups.com... Excuse me while I rant a little....... Hi there Bev! I've been thinking of you since you left to spend some time with your daughter on the t'other coast. I hear your pain as we research options locally. So in this little part of Canada, it's tough to locate and negotiate as well!! Not to say that there isn't help out there, it is somehow and for some reason not very well promoted to the public so accessibility bites. What's up with all the friggen forms too! I don't see why someone from these various agencies does not sit across the desk with you to fill them in together. Things shouldn't be so cryptically disassociated. Politicians suck at streamlining workflow. I've been reading dellastella pizza chick. Wes is indeed a dink. More of a Capital D Dink. There, that's more like it. Aww, my honey just walked in. Later! I am so so fed up and sick and tired of working through a system that is just plain sicker than its clients. My daughter and I have suffered through enough now. Where does a parent go for help? "the system" and this system of doctors and organisations and hospitals and government agencies,county agencies, schools, law enforcement , juvenile probation,that are all a part of this "mental health system" that we have been involved with for a solid four years now,I have followed my child through some of the hardest learning experiences a child would ever have to go through,Sometimes shielding her from a system I myself do not have much trust in. She turned 18 "Ya know that magical age" The one where children become "adults" yeah that age where This system I am refering to also finds this magical occurance of turning 18 years old as an instant cure for diagnosis'of bipolar, intermittent explosive disorder, oppositional defiant disorder,learning disabled, monocular vision,along with a few other things, all not a reason for my daughter to collect her SSI ! For four years ahhh o.k. three, took 'em a year to decide eligibility ,this has been the reason she recieved the SSI, now they say she can work, o.k. yeah she may be able to, but certainly not without vocational rehabilitation and guidance. It is making me nuts anymore, dealing with all this. She has finally started showing such wonderful improvement and is going back to H.S after we get through the IEP meeting, to obtain her diploma, GED is not appropriate for her because of the learning disabilities.I have put in an appeal for her on the SSI and have obtained an aplication for the vocational rehabilitation program for her, what part of "she has not been open to any of this before and now that she is " don't "they" understand? They just wanna push push push her stress level, stress triggers her episodes and maybe the person making these decisions needs to live with her for a month or two. Anyway If you read me thanks , not looking for sympathy or gold medals,venting feels good,I needed to lower -my- stress level to get on with this day. I see that most of you are doing o.k. I was very relieved "Rita" just tossled yer hair a little in the end of it all "Houston",In my "Jersey girl " slang "dat wuz f'n scary"! Hello everybody! Bev |
#4
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On 1 Oct 2005 09:00:12 -0700, "Bev" the
following was posted in blue dry erase marker: snipping everything I hear ya. You have an awful lot going on... kinda the normal state of affairs. I am sorry to hear about your sister's illness getting worse. Man, does that suck. I'm glad you're getting away for a little. I do remember the folks from GG. I wish Lorian was here. She would be a great resource for you. She's worked so long and hard at pulling herself up with similar issues and very little support. Do you want me to see if I can get in touch with her? 'Kate I am overwhelmed emotionally......It has been about 18 years since the onset of the HIV infection, she has been full blown Aids for quite some time , she is skin and bones, but bless her will to keep going.......I need to be strong, been here before, sucks indeed. I love the ride from PA to Long Island, not to long ,not to short, just the right "mental health drive" and in between I get to spend some quality time with some really good people, and I always get a nice big hug! If you can get in touch with Lorian that would be great . I am open to ideas and experience. Thanks ! Bev |
#5
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Hi there Bev!
Hello there Lisa ! I've been thinking of you since you left to spend some time with your daughter on the t'other coast. I hear your pain as we research options locally. So in this little part of Canada, it's tough to locate and negotiate as well!! Not to say that there isn't help out there, it is somehow and for some reason not very well promoted to the public so accessibility bites. Oh I know the help is there , and I am darn good at digging up the bones they hide! I have been ravaging the Pennsylvania system for two months now getting my sisters ducks in a row......... Right down to door to door transportation for her for medical appointments. What's up with all the friggen forms too! I don't see why someone from these various agencies does not sit across the desk with you to fill them in together. Things shouldn't be so cryptically disassociated. Politicians suck at streamlining workflow. FORMS ! Tell me about that ! Since the onset of this SSI appeal we have been sent three sets of exactly the same forms, same questions, wanting and needing more information? Ahhhhh that would be really freakin beautiful if the questions were multiple choice and we could choose a different answer each time for the same stupid question about "how many stairs do you climb to get into your house " and tell me what does that have to do with a mental health disability ? LOL! No "They" can not have my last brain cell ! I've been reading dellastella pizza chick. Wes is indeed a dink. More of a Capital D Dink. There, that's more like it. Oh Man is my daughter a peice of work or what? You know when she was before "Wes" some of her entries were so wonderful to read, humorous and witty , I would look forward to catching her next real life tale. Lately I have seen that light go out, I try to talk to her and she is getting nasty with me saying" I was having a kinda good day till you had to ask me if I called the doctor today" She may be shutting me out, she has not followed through with the arrangements, we had made when I went out there. She fooled me into believing she was on her way to helping herself.Now she treats me just tonight like the plague cause I was asking her if she made the calls or picked up the Drs. note yet for the school. I would like to reach my leg 3000 miles and kick her butt for her . I'm getting kind of numb, I do not know what to do aside from going back out there and insisting on a what is it ? 48 or 72 hour ? Mental health eval. or observation or something? This just can not continue, my last nerve needs a break. I was talking to Mari during our drive to Long Island today and we agree my daughters issues and crisis came about with the Boyfriend. Not the Social anxiety or depression, she needs meds and she is refusing to utilize the means to get them. No, before the relationship she took care of herself.I read she has the lowest self esteem and self worth because this unhealthy relationship is making her feel this way.Now I have told her this was how I felt and she is shutting me out. What am I suppose to do ? Aww, my honey just walked in. Later! sounds like there is someone sweet in your life ! enjoy I am typing at 2 a.m. ugh good night Mary-ellen! |
#6
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Thanks 'Kate ........I was just thinking....If Lorian would feel more
comfortable private e-mailing with me I think we would benefit better without the "plague" that could set in here, if my memory of reading a while back isn't failing me I rather not subject Lorian or I to that. This suggestion is only out "here" for the obvious reason. Now how do I go about having my e-mail known, google fudges it a little? I don't want to just type it out here cause then I may get stuff I don't want. Like porn Bev |
#7
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'Kate wrote: On 2 Oct 2005 07:07:52 -0700, "Bev" the following was posted in blue dry erase marker: Thanks 'Kate ........I was just thinking....If Lorian would feel more comfortable private e-mailing with me I think we would benefit better without the "plague" that could set in here, if my memory of reading a while back isn't failing me I rather not subject Lorian or I to that. That's what I suggested when I emailed her. I'm not sure that the address I have for her is current. This suggestion is only out "here" for the obvious reason. Now how do I go about having my e-mail known, google fudges it a little? I don't want to just type it out here cause then I may get stuff I don't want. Like porn Bev oy. I get the penis enlargement emails. hmmm. Let me think on that and see if I get an answer from her, ok? 'Kate LOL! really....I am perfectly happy with the size of my penis, those emails would go totally to waste yep o.k..... you think on that and I hope she left a conection open to ya ! Bev |
#8
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'Kate wrote: On 2 Oct 2005 07:07:52 -0700, "Bev" the following was posted in blue dry erase marker: Thanks 'Kate ........I was just thinking....If Lorian would feel more comfortable private e-mailing with me I think we would benefit better without the "plague" that could set in here, if my memory of reading a while back isn't failing me I rather not subject Lorian or I to that. That's what I suggested when I emailed her. I'm not sure that the address I have for her is current. Kate, Lorian has contacted me via e-mail, thanks , really means a lot Bev |
#9
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It's a miracle !!!!!
"Bev" wrote in message ups.com... Excuse me while I rant a little....... I am so so fed up and sick and tired of working through a system that is just plain sicker than its clients. My daughter and I have suffered through enough now. Where does a parent go for help? "the system" and this system of doctors and organisations and hospitals and government agencies,county agencies, schools, law enforcement , juvenile probation,that are all a part of this "mental health system" that we have been involved with for a solid four years now,I have followed my child through some of the hardest learning experiences a child would ever have to go through,Sometimes shielding her from a system I myself do not have much trust in. She turned 18 "Ya know that magical age" The one where children become "adults" yeah that age where This system I am refering to also finds this magical occurance of turning 18 years old as an instant cure for diagnosis'of bipolar, intermittent explosive disorder, oppositional defiant disorder,learning disabled, monocular vision,along with a few other things, all not a reason for my daughter to collect her SSI ! For four years ahhh o.k. three, took 'em a year to decide eligibility ,this has been the reason she recieved the SSI, now they say she can work, o.k. yeah she may be able to, but certainly not without vocational rehabilitation and guidance. It is making me nuts anymore, dealing with all this. She has finally started showing such wonderful improvement and is going back to H.S after we get through the IEP meeting, to obtain her diploma, GED is not appropriate for her because of the learning disabilities.I have put in an appeal for her on the SSI and have obtained an aplication for the vocational rehabilitation program for her, what part of "she has not been open to any of this before and now that she is " don't "they" understand? They just wanna push push push her stress level, stress triggers her episodes and maybe the person making these decisions needs to live with her for a month or two. Anyway If you read me thanks , not looking for sympathy or gold medals,venting feels good,I needed to lower -my- stress level to get on with this day. I see that most of you are doing o.k. I was very relieved "Rita" just tossled yer hair a little in the end of it all "Houston",In my "Jersey girl " slang "dat wuz f'n scary"! Hello everybody! Bev Hey Bev! Rant away. The number 18 slips through the cracks often. This is a trying year for trying to obtain help for her. Push Bev and get creative in your plight for resources for your daughter. Take care, V -- Mental Floss prevents Moral Decay. |
#10
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It's a miracle !!!!!
V wrote: "Bev" wrote in message ups.com... Excuse me while I rant a little....... Hey Bev! Rant away. The number 18 slips through the cracks often. This is a trying year for trying to obtain help for her. Push Bev and get creative in your plight for resources for your daughter. Take care, V -- Mental Floss prevents Moral Decay. Hello V Thanks for the "permission to rant" I rant well, this was actually the PG version LOL! I have the foulest language when I reach the rant stage. Have learnt (---- is that right? )to tone it down , get better results when I leave the Irish part of the temper out of things . I have paperwork up the ying yang these days forms forms forms , Starting a new job and I have a folder of forms for that too ! Ugh....and school, what the heck was I thinking ? My sister was admitted to the hospital yesterday too I must go multi task, if I am scarce it's because my life just went into 5th gear ! too too too two two two to to to 222 Do I use the word too correctly? school....... proper punctuation and grammar and spelling ...who me freaking out? Bev |
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