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#1
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son diagnosed with autism
Well, my oldest will be 9 this month. Believe it or not, he *just* got his
autism diagnosis today. He has been to so many neurologists, psychiatrists, therapists, and they finally, finally, finally gave him the diagnosis. Now I can start collection SSI (personal nannies during the summer can be expensive), and hopefully get some respite care. I knew he was autistic, but the thing that got me is that he also received a diagnosis of severe mental retardation. He doesn't talk, and I knew he was slow on some things, but I always attributed it solely to his autism. Apparently, thought (according to the doc), in my son's case, there are indeed 2 distinct diagnoses. They put him at 25% - 35% development for his age (i.e., IQ of 25 - 35). This is my son!!! The additional diagnosis doesn't surprise me, but I have to admit, it's a bit of an impact. He then went on to tell me about him hitting puberty, and that I should start considering homes for him for when he becomes an adult, as many of the better local group homes have 5 - 10 year waiting lists. To top this off, my youngest son is starting a remedial class in the 1st grade. I feel like I'm drowning sometimes. Okay, anyone have any advice, or better yet, as anyone else gone through this and lived to tell about it? Mike |
#2
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son diagnosed with autism
Mike wrote: Well, my oldest will be 9 this month. Believe it or not, he *just* got his autism diagnosis today. He has been to so many neurologists, psychiatrists, therapists, and they finally, finally, finally gave him the diagnosis. Now I can start collection SSI (personal nannies during the summer can be expensive), and hopefully get some respite care. I knew he was autistic, but the thing that got me is that he also received a diagnosis of severe mental retardation. He doesn't talk, and I knew he was slow on some things, but I always attributed it solely to his autism. Apparently, thought (according to the doc), in my son's case, there are indeed 2 distinct diagnoses. They put him at 25% - 35% development for his age (i.e., IQ of 25 - 35). This is my son!!! The additional diagnosis doesn't surprise me, but I have to admit, it's a bit of an impact. He then went on to tell me about him hitting puberty, and that I should start considering homes for him for when he becomes an adult, as many of the better local group homes have 5 - 10 year waiting lists. To top this off, my youngest son is starting a remedial class in the 1st grade. I feel like I'm drowning sometimes. Okay, anyone have any advice, or better yet, as anyone else gone through this and lived to tell about it? Mike Hello Mike, There are many programs available to assist you and your son. There are special schools and day programs. I am not an expert , I do know a bit about autism, my partner has worked with autistic teens and adults in group home settings.She could actually do better at this than I , I will ask her if maybe she could type you some info.May I ask what state you are in ? Are his behaviors such that a group home will be necessary? How have you been coping up until now? My partner is currently working with 14 - 18 yr. old boys. I think talking with her may help . Bev |
#3
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son diagnosed with autism
I would like talking to her. Right now his behaviour is fine. He is very
sweet and gentle, and helps with a few light chores around the house. He can sit with me through church with very little problem... he's just the best son I could ask for. I guess I was just considering all the possibilities of what might be necessary, especially as he reaches puberty. I'd be perfectly happy with him staying with me, but I just want to keep my eyes open to all possible necessities. Does that make sense? I feel like my writing here tonight is a bit garbled... I'm kinda out of it. Oh, yeah... I'm in ne Florida. Go Jags! anyways... Mike "Bev" wrote in message ups.com... Mike wrote: Well, my oldest will be 9 this month. Believe it or not, he *just* got his autism diagnosis today. He has been to so many neurologists, psychiatrists, therapists, and they finally, finally, finally gave him the diagnosis. Now I can start collection SSI (personal nannies during the summer can be expensive), and hopefully get some respite care. I knew he was autistic, but the thing that got me is that he also received a diagnosis of severe mental retardation. He doesn't talk, and I knew he was slow on some things, but I always attributed it solely to his autism. Apparently, thought (according to the doc), in my son's case, there are indeed 2 distinct diagnoses. They put him at 25% - 35% development for his age (i.e., IQ of 25 - 35). This is my son!!! The additional diagnosis doesn't surprise me, but I have to admit, it's a bit of an impact. He then went on to tell me about him hitting puberty, and that I should start considering homes for him for when he becomes an adult, as many of the better local group homes have 5 - 10 year waiting lists. To top this off, my youngest son is starting a remedial class in the 1st grade. I feel like I'm drowning sometimes. Okay, anyone have any advice, or better yet, as anyone else gone through this and lived to tell about it? Mike Hello Mike, There are many programs available to assist you and your son. There are special schools and day programs. I am not an expert , I do know a bit about autism, my partner has worked with autistic teens and adults in group home settings.She could actually do better at this than I , I will ask her if maybe she could type you some info.May I ask what state you are in ? Are his behaviors such that a group home will be necessary? How have you been coping up until now? My partner is currently working with 14 - 18 yr. old boys. I think talking with her may help . Bev |
#4
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son diagnosed with autism
Mike wrote: I would like talking to her. She will like talking to you as well, I know her heart is deeply involved in what she does. Right now his behaviour is fine. He is very sweet and gentle, and helps with a few light chores around the house. He can sit with me through church with very little problem... he's just the best son I could ask for. I guess I was just considering all the possibilities of what might be necessary, especially as he reaches puberty. The boys she works with have some severe behavior issues, not all the time but there are incidents. I'd be perfectly happy with him staying with me, but I just want to keep my eyes open to all possible necessities. Absolutely.... Does that make sense? I feel like my writing here tonight is a bit garbled... I'm kinda out of it. Oh, yeah... I'm in ne Florida. Go Jags! anyways... Mike You made sense......we are in Pa. I will have Mari type you tomorrow. Bev "Bev" wrote in message ups.com... Mike wrote: Well, my oldest will be 9 this month. Believe it or not, he *just* got his autism diagnosis today. He has been to so many neurologists, psychiatrists, therapists, and they finally, finally, finally gave him the diagnosis. Now I can start collection SSI (personal nannies during the summer can be expensive), and hopefully get some respite care. I knew he was autistic, but the thing that got me is that he also received a diagnosis of severe mental retardation. He doesn't talk, and I knew he was slow on some things, but I always attributed it solely to his autism. Apparently, thought (according to the doc), in my son's case, there are indeed 2 distinct diagnoses. They put him at 25% - 35% development for his age (i.e., IQ of 25 - 35). This is my son!!! The additional diagnosis doesn't surprise me, but I have to admit, it's a bit of an impact. He then went on to tell me about him hitting puberty, and that I should start considering homes for him for when he becomes an adult, as many of the better local group homes have 5 - 10 year waiting lists. To top this off, my youngest son is starting a remedial class in the 1st grade. I feel like I'm drowning sometimes. Okay, anyone have any advice, or better yet, as anyone else gone through this and lived to tell about it? Mike Hello Mike, There are many programs available to assist you and your son. There are special schools and day programs. I am not an expert , I do know a bit about autism, my partner has worked with autistic teens and adults in group home settings.She could actually do better at this than I , I will ask her if maybe she could type you some info.May I ask what state you are in ? Are his behaviors such that a group home will be necessary? How have you been coping up until now? My partner is currently working with 14 - 18 yr. old boys. I think talking with her may help . Bev |
#5
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son diagnosed with autism
Mike wrote:
Well, my oldest will be 9 this month. Believe it or not, he *just* got his autism diagnosis today. He has been to so many neurologists, psychiatrists, therapists, and they finally, finally, finally gave him the diagnosis. Now I can start collection SSI (personal nannies during the summer can be expensive), and hopefully get some respite care. I knew he was autistic, but the thing that got me is that he also received a diagnosis of severe mental retardation. He doesn't talk, and I knew he was slow on some things, but I always attributed it solely to his autism. Apparently, thought (according to the doc), in my son's case, there are indeed 2 distinct diagnoses. They put him at 25% - 35% development for his age (i.e., IQ of 25 - 35). This is my son!!! The additional diagnosis doesn't surprise me, but I have to admit, it's a bit of an impact. He then went on to tell me about him hitting puberty, and that I should start considering homes for him for when he becomes an adult, as many of the better local group homes have 5 - 10 year waiting lists. To top this off, my youngest son is starting a remedial class in the 1st grade. I feel like I'm drowning sometimes. Okay, anyone have any advice, or better yet, as anyone else gone through this and lived to tell about it? Mike Hello Mike, I'm Bev's Partner Mari. Bev was telling me about your post, I hope I can help. I have been working in the field of Autism going on 6 yrs. My work is in group homes. I have spent the last 9 months working with teen boys in a group home setting. The boys are 14, 15, and 18. Their behaviors vary from extreme to age related. The company I work for is RHD Resources for Human Development. They have homes from Boston to Florida. First off you might want to look into support groups in your area. Those in the groups will be able to let you know how to go about getting the assistance you need. http://209.200.89.252/search_site/ch...name=&state=FL This is Autism Society of America's web page for Florida They have a tremendous amount of info. They also have local chapters you can connect with. How does your son communicate his needs and wants to you? Does he use sign language ? There is a great system we use called Pecs, Picture Exchange Communication System. Which are picture cards for everything. Most cards are photo pictures and are used to communicate want and needs. They are used to communicate feelings, what they want to do ex: to play ball your son would go to his communication book and pick out the ball card and show it to you. The system is really a excellent communication tool. One of the reasons Autistic folks have behaviors is their inability to communicate their wants @ needs. This can make them very frustrated and cause their outbursts and behaviors. The deal with group homes is there is such a long waiting list. And you need to look towards the future. You becoming older and no longer being able to take care of your son. What would happen to your son if you unexpectedly passed away. Who would care for him. In a group home setting you are still his Dad ,you make all the calls. He may be living there, but you can visit anytime, and I mean anytime .you can take him home, anytime. You can stop by and take him to dinner, ball game, whatever you want. When working with Autistic folks structure is the main key to their being. Autistic folks get in the most trouble when they're BORED. Not saying to put him there now, but this is something to need to take an honest look at for his future. There is so much going on right now as far as Autism, great strides are being made daily. Mike ....... http://www.autismsource.org/ This is another site that has so much info, check it out . Please let me know how all is going. Hope this helped. Mari p.s. since I noticed you are a football kinda guy, I think you might be interested in looking into the Doug Flutie Foundation his son is Autistic. |
#6
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MIKE???? was....... son diagnosed with autism
Just wondering if you overlooked this?
Bev Mari wrote: Hello Mike, I'm Bev's Partner Mari. Bev was telling me about your post, I hope I can help. I have been working in the field of Autism going on 6 yrs. My work is in group homes. I have spent the last 9 months working with teen boys in a group home setting. The boys are 14, 15, and 18. Their behaviors vary from extreme to age related. The company I work for is RHD Resources for Human Development. They have homes from Boston to Florida. First off you might want to look into support groups in your area. Those in the groups will be able to let you know how to go about getting the assistance you need. http://209.200.89.252/search_site/ch...name=&state=FL This is Autism Society of America's web page for Florida They have a tremendous amount of info. They also have local chapters you can connect with. How does your son communicate his needs and wants to you? Does he use sign language ? There is a great system we use called Pecs, Picture Exchange Communication System. Which are picture cards for everything. Most cards are photo pictures and are used to communicate want and needs. They are used to communicate feelings, what they want to do ex: to play ball your son would go to his communication book and pick out the ball card and show it to you. The system is really a excellent communication tool. One of the reasons Autistic folks have behaviors is their inability to communicate their wants @ needs. This can make them very frustrated and cause their outbursts and behaviors. The deal with group homes is there is such a long waiting list. And you need to look towards the future. You becoming older and no longer being able to take care of your son. What would happen to your son if you unexpectedly passed away. Who would care for him. In a group home setting you are still his Dad ,you make all the calls. He may be living there, but you can visit anytime, and I mean anytime .you can take him home, anytime. You can stop by and take him to dinner, ball game, whatever you want. When working with Autistic folks structure is the main key to their being. Autistic folks get in the most trouble when they're BORED. Not saying to put him there now, but this is something to need to take an honest look at for his future. There is so much going on right now as far as Autism, great strides are being made daily. Mike ....... http://www.autismsource.org/ This is another site that has so much info, check it out . Please let me know how all is going. Hope this helped. Mari p.s. since I noticed you are a football kinda guy, I think you might be interested in looking into the Doug Flutie Foundation his son is Autistic. |
#7
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MIKE???? was....... son diagnosed with autism
Bev wrote: Just wondering if you overlooked this? Bev Oh Well Not sure why you dropped the conversation, I hope everything works out o.k. for you and especially your son. Bev Mari wrote: Hello Mike, I'm Bev's Partner Mari. Bev was telling me about your post, I hope I can help. I have been working in the field of Autism going on 6 yrs. My work is in group homes. I have spent the last 9 months working with teen boys in a group home setting. The boys are 14, 15, and 18. Their behaviors vary from extreme to age related. The company I work for is RHD Resources for Human Development. They have homes from Boston to Florida. First off you might want to look into support groups in your area. Those in the groups will be able to let you know how to go about getting the assistance you need. http://209.200.89.252/search_site/ch...name=&state=FL This is Autism Society of America's web page for Florida They have a tremendous amount of info. They also have local chapters you can connect with. How does your son communicate his needs and wants to you? Does he use sign language ? There is a great system we use called Pecs, Picture Exchange Communication System. Which are picture cards for everything. Most cards are photo pictures and are used to communicate want and needs. They are used to communicate feelings, what they want to do ex: to play ball your son would go to his communication book and pick out the ball card and show it to you. The system is really a excellent communication tool. One of the reasons Autistic folks have behaviors is their inability to communicate their wants @ needs. This can make them very frustrated and cause their outbursts and behaviors. The deal with group homes is there is such a long waiting list. And you need to look towards the future. You becoming older and no longer being able to take care of your son. What would happen to your son if you unexpectedly passed away. Who would care for him. In a group home setting you are still his Dad ,you make all the calls. He may be living there, but you can visit anytime, and I mean anytime .you can take him home, anytime. You can stop by and take him to dinner, ball game, whatever you want. When working with Autistic folks structure is the main key to their being. Autistic folks get in the most trouble when they're BORED. Not saying to put him there now, but this is something to need to take an honest look at for his future. There is so much going on right now as far as Autism, great strides are being made daily. Mike ....... http://www.autismsource.org/ This is another site that has so much info, check it out . Please let me know how all is going. Hope this helped. Mari p.s. since I noticed you are a football kinda guy, I think you might be interested in looking into the Doug Flutie Foundation his son is Autistic. |
#8
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MIKE???? was....... son diagnosed with autism
My apologies, Bev. I've been busy, and just yesterday had a chance to pop
back into the group and say hi on one of the posts. I didn't mean to ignore you. Many thanks for the encouragement and links from both you and Mari. Bookmarked, read, continuing to read, and I've forwarded yall's (I'm southern) post to my email address so I wouldn't lose it. I'm in an information gathering mode, and I've even found a local support group for parents with autistic children. It's nice to know that there are people out there who won't shun your family just because of your child's needs (yeah, people do that in both subtle and not-so-subtle ways). Again, many thanks. This seems a pretty tight group, so I'll let you guys know... some pics of me and my boys are on MySpace under mikeleeisback. My oldest son is the one with the diagnosis. They're handsome, ain't they? Anywho, I'm off to bed I think, or at least to the couch with my TiVo. Yall have a good night. Mike "Bev" wrote in message oups.com... Bev wrote: Just wondering if you overlooked this? Bev Oh Well Not sure why you dropped the conversation, I hope everything works out o.k. for you and especially your son. Bev Mari wrote: Hello Mike, I'm Bev's Partner Mari. Bev was telling me about your post, I hope I can help. I have been working in the field of Autism going on 6 yrs. My work is in group homes. I have spent the last 9 months working with teen boys in a group home setting. The boys are 14, 15, and 18. Their behaviors vary from extreme to age related. The company I work for is RHD Resources for Human Development. They have homes from Boston to Florida. First off you might want to look into support groups in your area. Those in the groups will be able to let you know how to go about getting the assistance you need. http://209.200.89.252/search_site/ch...name=&state=FL This is Autism Society of America's web page for Florida They have a tremendous amount of info. They also have local chapters you can connect with. How does your son communicate his needs and wants to you? Does he use sign language ? There is a great system we use called Pecs, Picture Exchange Communication System. Which are picture cards for everything. Most cards are photo pictures and are used to communicate want and needs. They are used to communicate feelings, what they want to do ex: to play ball your son would go to his communication book and pick out the ball card and show it to you. The system is really a excellent communication tool. One of the reasons Autistic folks have behaviors is their inability to communicate their wants @ needs. This can make them very frustrated and cause their outbursts and behaviors. The deal with group homes is there is such a long waiting list. And you need to look towards the future. You becoming older and no longer being able to take care of your son. What would happen to your son if you unexpectedly passed away. Who would care for him. In a group home setting you are still his Dad ,you make all the calls. He may be living there, but you can visit anytime, and I mean anytime .you can take him home, anytime. You can stop by and take him to dinner, ball game, whatever you want. When working with Autistic folks structure is the main key to their being. Autistic folks get in the most trouble when they're BORED. Not saying to put him there now, but this is something to need to take an honest look at for his future. There is so much going on right now as far as Autism, great strides are being made daily. Mike ....... http://www.autismsource.org/ This is another site that has so much info, check it out . Please let me know how all is going. Hope this helped. Mari p.s. since I noticed you are a football kinda guy, I think you might be interested in looking into the Doug Flutie Foundation his son is Autistic. |
#9
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MIKE???? was....... son diagnosed with autism
Mike wrote: My apologies, Bev. I've been busy, and just yesterday had a chance to pop back into the group and say hi on one of the posts. I didn't mean to ignore you. O.K. I forgive you for leaving me hangin' :-) Many thanks for the encouragement and links from both you and Mari. Bookmarked, read, continuing to read, and I've forwarded yall's (I'm southern) post to my email address so I wouldn't lose it. I'm in an information gathering mode, and I've even found a local support group for parents with autistic children. It's nice to know that there are people out there who won't shun your family just because of your child's needs (yeah, people do that in both subtle and not-so-subtle ways). Again, many thanks. You are very welcome Mike , I truly understand the frustration with not feeling supported and even shunned by people that do not understand cognitive, developmental and mental health disabilities.I have traveled a very long 7 year road with my soon to be 19 year old daughter who began at age 13 with diagnosis' from adhd, bipolar , and now borderline personality disorder......so far the BPD diagnosis is the one that makes the most sense after all this time. What was hardest I think for myself and daughter was/is the family not understanding , where I needed my moms support I had none , she would not believe my daughter was sick..... just a bad a$$ that I should turn my back on. It's been tough. This seems a pretty tight group, so I'll let you guys know... some pics of me and my boys are on MySpace under mikeleeisback. My oldest son is the one with the diagnosis. They're handsome, ain't they? I searched Myspace high and low and could not find mikeleeisback ?? I'm dissapointed now that I could not check out the handsome boys :-( Anywho, I'm off to bed I think, or at least to the couch with my TiVo. Yall have a good night. Mike Hope your night was relaxing...... Bev "Bev" wrote in message oups.com... Bev wrote: Just wondering if you overlooked this? Bev Oh Well Not sure why you dropped the conversation, I hope everything works out o.k. for you and especially your son. Bev Mari wrote: Hello Mike, I'm Bev's Partner Mari. Bev was telling me about your post, I hope I can help. I have been working in the field of Autism going on 6 yrs. My work is in group homes. I have spent the last 9 months working with teen boys in a group home setting. The boys are 14, 15, and 18. Their behaviors vary from extreme to age related. The company I work for is RHD Resources for Human Development. They have homes from Boston to Florida. First off you might want to look into support groups in your area. Those in the groups will be able to let you know how to go about getting the assistance you need. http://209.200.89.252/search_site/ch...name=&state=FL This is Autism Society of America's web page for Florida They have a tremendous amount of info. They also have local chapters you can connect with. How does your son communicate his needs and wants to you? Does he use sign language ? There is a great system we use called Pecs, Picture Exchange Communication System. Which are picture cards for everything. Most cards are photo pictures and are used to communicate want and needs. They are used to communicate feelings, what they want to do ex: to play ball your son would go to his communication book and pick out the ball card and show it to you. The system is really a excellent communication tool. One of the reasons Autistic folks have behaviors is their inability to communicate their wants @ needs. This can make them very frustrated and cause their outbursts and behaviors. The deal with group homes is there is such a long waiting list. And you need to look towards the future. You becoming older and no longer being able to take care of your son. What would happen to your son if you unexpectedly passed away. Who would care for him. In a group home setting you are still his Dad ,you make all the calls. He may be living there, but you can visit anytime, and I mean anytime .you can take him home, anytime. You can stop by and take him to dinner, ball game, whatever you want. When working with Autistic folks structure is the main key to their being. Autistic folks get in the most trouble when they're BORED. Not saying to put him there now, but this is something to need to take an honest look at for his future. There is so much going on right now as far as Autism, great strides are being made daily. Mike ....... http://www.autismsource.org/ This is another site that has so much info, check it out . Please let me know how all is going. Hope this helped. Mari p.s. since I noticed you are a football kinda guy, I think you might be interested in looking into the Doug Flutie Foundation his son is Autistic. |
#10
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MIKE???? was....... son diagnosed with autism
Try this: www.myspace.com/mikeleeisback
Still working on it at the moment. "Bev" wrote in message oups.com... Mike wrote: My apologies, Bev. I've been busy, and just yesterday had a chance to pop back into the group and say hi on one of the posts. I didn't mean to ignore you. O.K. I forgive you for leaving me hangin' :-) Many thanks for the encouragement and links from both you and Mari. Bookmarked, read, continuing to read, and I've forwarded yall's (I'm southern) post to my email address so I wouldn't lose it. I'm in an information gathering mode, and I've even found a local support group for parents with autistic children. It's nice to know that there are people out there who won't shun your family just because of your child's needs (yeah, people do that in both subtle and not-so-subtle ways). Again, many thanks. You are very welcome Mike , I truly understand the frustration with not feeling supported and even shunned by people that do not understand cognitive, developmental and mental health disabilities.I have traveled a very long 7 year road with my soon to be 19 year old daughter who began at age 13 with diagnosis' from adhd, bipolar , and now borderline personality disorder......so far the BPD diagnosis is the one that makes the most sense after all this time. What was hardest I think for myself and daughter was/is the family not understanding , where I needed my moms support I had none , she would not believe my daughter was sick..... just a bad a$$ that I should turn my back on. It's been tough. This seems a pretty tight group, so I'll let you guys know... some pics of me and my boys are on MySpace under mikeleeisback. My oldest son is the one with the diagnosis. They're handsome, ain't they? I searched Myspace high and low and could not find mikeleeisback ?? I'm dissapointed now that I could not check out the handsome boys :-( Anywho, I'm off to bed I think, or at least to the couch with my TiVo. Yall have a good night. Mike Hope your night was relaxing...... Bev "Bev" wrote in message oups.com... Bev wrote: Just wondering if you overlooked this? Bev Oh Well Not sure why you dropped the conversation, I hope everything works out o.k. for you and especially your son. Bev Mari wrote: Hello Mike, I'm Bev's Partner Mari. Bev was telling me about your post, I hope I can help. I have been working in the field of Autism going on 6 yrs. My work is in group homes. I have spent the last 9 months working with teen boys in a group home setting. The boys are 14, 15, and 18. Their behaviors vary from extreme to age related. The company I work for is RHD Resources for Human Development. They have homes from Boston to Florida. First off you might want to look into support groups in your area. Those in the groups will be able to let you know how to go about getting the assistance you need. http://209.200.89.252/search_site/ch...name=&state=FL This is Autism Society of America's web page for Florida They have a tremendous amount of info. They also have local chapters you can connect with. How does your son communicate his needs and wants to you? Does he use sign language ? There is a great system we use called Pecs, Picture Exchange Communication System. Which are picture cards for everything. Most cards are photo pictures and are used to communicate want and needs. They are used to communicate feelings, what they want to do ex: to play ball your son would go to his communication book and pick out the ball card and show it to you. The system is really a excellent communication tool. One of the reasons Autistic folks have behaviors is their inability to communicate their wants @ needs. This can make them very frustrated and cause their outbursts and behaviors. The deal with group homes is there is such a long waiting list. And you need to look towards the future. You becoming older and no longer being able to take care of your son. What would happen to your son if you unexpectedly passed away. Who would care for him. In a group home setting you are still his Dad ,you make all the calls. He may be living there, but you can visit anytime, and I mean anytime .you can take him home, anytime. You can stop by and take him to dinner, ball game, whatever you want. When working with Autistic folks structure is the main key to their being. Autistic folks get in the most trouble when they're BORED. Not saying to put him there now, but this is something to need to take an honest look at for his future. There is so much going on right now as far as Autism, great strides are being made daily. Mike ....... http://www.autismsource.org/ This is another site that has so much info, check it out . Please let me know how all is going. Hope this helped. Mari p.s. since I noticed you are a football kinda guy, I think you might be interested in looking into the Doug Flutie Foundation his son is Autistic. |
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