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The American Academy of Pediatrics Shows Up in Autism Treatment



 
 
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Old April 19th 08, 05:36 AM posted to alt.support.breast-implant,misc.health.alternative,misc.kids.health
Jan Drew
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Default The American Academy of Pediatrics Shows Up in Autism Treatment

http://adventuresinautism.blogspot.c...-shows-up.html

Monday, April 07, 2008

  #2  
Old April 19th 08, 07:05 AM posted to alt.support.breast-implant,misc.health.alternative,misc.kids.health
Greegor
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Default The American Academy of Pediatrics Shows Up in Autism Treatment

http://adventuresinautism.blogspot.c...-shows-up.html

Monday, April 07, 2008
The American Academy of Pediatrics Shows Up in Autism Treatment

The Defeat Autism Now! Conference was last weekend and the big news
was not that Jenny McCarthy showed up, but that the American Academy
of Pediatrics showed up.

After years of inaction and obfuscation, this was action number two
taken by the AAP in just one week.

AAP not only showed up, from what I can put together, they really
listened. They saw that the doctors presenting were their doctors and
that the families in the audience were their patients. They got that
the research and the interventions had a solid base and that medical
approach to treating what is currently diagnosed as ‘autism’ has
already begun with out them. They got that it is time for them to
begin investing in what we have started.

I hear that they understand the multisystem failure that is going on
in our kids and the multi system approach that is needed to address
it.

I think they got a taste of how wrong it has been that parents
complaints to, and questions of, doctors have been treated with such
hostility, and that doctors who spoke up for our children were
ostracized.

… and I got the feeling that they might even have been a little
impressed with the way that our community has taken back an entire
arena of medicine from drug companies and insurance companies and
hospital systems and all other things big medicine.

The first step in building bridges, real relationships, is to show up
and listen. They have done that.

But now comes the hard part for the AAP… what to do with that
information. They know it is real, they know that we are on the level,
and they know that the treatments are working. Can they take that and
do what really needs to be done, no matter where the trail leads?

Are they ready to announce that vaccines are the big trigger? I don’t
think so. I would be surprised if they were ready to do that yet.
Vaccination changed their profession dramatically, and for the better,
and to come to terms with the fact that it has crossed the line and
gone too far… to admit out loud that they have caused so much damage…
that will be very difficult. Not just for the AAP body as a whole, but
for each individual pediatrician.

Are they ready to start participating in real research with us? I
think they very well might be on treatment options, but good vaccine
research, a real vaccinated vs. unvaccinated study? That is the
million dollar question.

In this Age of Autism (to borrow from Dan Olmsted), where parents like
me have been burned and burned hard, action talks and bull**** walks.
We watch every move that docs make and judge carefully who is really
looking out for the best interests of our vulnerable children, and who
is looking out for their own interests.

I have, in no way, hidden my contempt for the actions of the AAP over
the last decade for what they have and have not done in the autism
epidemic, and for the potential disaster that will take place if in
fact David Tayloe does take charge of this body.

But the current leadership of the AAP has gotten my attention with
their actions in the last week. I think that they are in a rare moment
in time where a state of flux is occurring, and there is a possibility
of them turning a corner and making a real attempt to redeem
themselves.

Voices that are usually squelched are being heard.

I think this is a fragile window. Failing to continue to move forward
with real action, and assuming that reverting to bull**** public
statements will placate autism moms and dads, would start closing that
window quickly. The reign of David Tayloe would kill it stone dead.

I have a few words of advice for the AAP if they are concerned with
stopping the slide of public trust and keeping the vaccine program
from crumbling:

1. Say goodbye to your ego.

If you got into this business to be treated like the big guy and want
to stay the big guy, then you will only get in the way of bringing our
children back. If you can get past yourself, you will start to see
beautiful stories of healing in families that have been devastated.
You have the chance to become a part of something amazing that is
happening in families who were told that their child was no longer
functional and should be put away. Choose to see life return even at
the expense of your pride (and your Mercedes and your vacations).

2. Tell the truth, the whole truth and nothing but the truth. No
matter what happens, no matter the fall out, no matter the shame. You
have one chance here to clean out the cancer that is the lies that
have been told to American parents by the CDC about vaccine safety. If
you take this time to CYA, then you won’t get another chance.

3. Find a nice, dignified excuse to set David Tayloe aside as the next
AAP president and choose someone of integrity and character like Jay
Gordon who will treat vaccine injury with seriousness and the
intricacies human body with humility. I personally won’t listen to any
doctor who listens to David Tayloe.

4. Actually participate in real vaccine debate. When what passes for a
debate only includes those whose livelihood depends on vaccination
continuing, it is not a real debate.

What has been referred to as the ‘vaccine debate’ for the last four
years since the IOM decision has looked like this: A panel of doctors
from the CDC, AAP, IOM, NIH, HHS having mutual admiration society
catered by GSK while congratulating themselves on eradicating polio
and rubella, inside a building owned by a hospital that is owned by an
insurance company that is owned by Merck, while parents and the
doctors who listen to them and heal their children are locked outside
banging on the door trying to get in.

None of the parents’ points, complaints or questions are addressed,
and if one does manage to get in, she is told to sit down or is
escorted from the building.

Literally.

Registered nurse, Lyn Redwood, one of the first mercury moms, a very
smart, dignified and soft spoken woman who had testified before
congress, when attending a CDC public meeting, asked why the committee
would not state a preference for pregnant women to get thimerosal free
vaccines. She was told to sit down.

When CDC held a press conference on vaccines in 2005, we went to the
HHS building in DC, but weren’t allowed in the room to ask questions.
Parents were escorted to a ‘holding area’ with a TV so we could watch
it remotely. Lyn was there with us.

Later, we tried to talk directly to pediatricians. Generation Rescue,
a brand new organization at the time, rented a booth at the 2005 AAP
convention in DC, and Lyn and her husband, physician Tommy Redwood,
were among the parents there to share with your doctors.

Our message was printed on a large banner that stretched across the
back of the room, “Autism is Preventable and Treatable”. When we
arrived, The Redwoods, along with other parents who had been raising
valid and responsible questions about the vaccine program, were
prevented by security from entering the building to work at the
booth.

The most heart breaking thing about that fear based, controlling
decision, was that Lyn’s recovered son was also turned away from the
building. His name was actually printed on the list given to us as to
who would not be allowed to man the booth. Pediatricians from around
the world had a chance to meet and interact with a recovered child
face to face three years ago. The pictures I brought of Chandler were
paltry replacement for a real live talking boy, but you locked him
out.

If you want to build faith with us, then a good sign that you are
ready to take responsibility for your actions would be to apologize to
the "DC 7" Scott Bono, Laura Bono, Lyn Redwood, Tommy Redwood MD, Will
Redwood (now 14 years old), Wendy Fournier and John Gilmore.

And then continue the REAL vaccine/autism debate that begun on Larry
King last week. Get a hall in DC, a really big one, and let’s face
each other and slog through all the research and records and deal with
this. You are gonna get yelled at, just like Jenny yelled at Karp, you
are gonna see a lot of tears, you are going to have to eat a lot of
crow and it will all be on the record. But that is what it is going to
take to put humpty dumpty back together.

5. Apologize for harming our children, not treating the injury and not
listening to parents when they tried to tell you about vaccine
regression and recovery.

We know that you were lied to. We know that you have to depend on the
CDC to give you guidance. We know that they have orchestrated this
nightmare charade.

But you did not meet your ethical obligations to proof them. Your
leadership continues to hold out crap studies like Verstaeten, Denmark
and Fombonne to disprove the vaccine autism link. You need to remove
your stamp of approval from them, admit that they don’t prove what
people have claimed that they prove, and join us in asking that they
be retracted. If you do that there is still a chance to salvage
something.

You have serious culpability here, but we know that you are not the
source of the big lie.

6. Clean up this mess. Take action now. If you try to play the ‘death
by committee’ game like the IOM did, parents will start tuning you out
at the first mention of the words ‘task force’.

You have to start with this: Autism treatment is not a top down
operation like other approaches to defeating an illness you are used
to. If you could have understood it the way we have illnesses like
rubella, you would have by now. If it could be tackled the way HIV
was, then the Autism Speaks modus operandi would have yielded results,
but it hasn’t.

Autism, or ‘Autisms’ as successful practitioners have come to define
it, is not one thing, and is extremely complicated. So you can’t start
with the ‘disease’ and then apply lessons to the child. You have to
start with the individual child to get to the ‘disease’

It is a varied syndrome and our kids pick a la cart from a long list
of physical problems.

Get a copy of Bryan Jepson’s book, Changing the Course of Autism in
the hands of every one of your members.

Tell them to call their patients who are diagnosed with autism into
the office for a long sit down to find out what parents have been
trying with them, what is working and what is not. Have them listen to
the child’s whole story, a COMPLETE history of all that has happened
since before conception. They will learn huge amounts of information
doing this.

Walk into the DAN! docs offices and start putting eyeballs on our
kids. Physically examine them and start testing.

Get DAN! docs to hold training sessions all over the country for AAP
members.

Invite local parents to speak to your pediatricians and tell them what
they know. We are not doctors but we are experts on our children.

(You wanna be really smart? Do what the smart DAN! docs do. Encourage
your docs to find the brightest autism mom in town who is treating her
child, the one that the other mom’s call with questions, and hire her
as their research assistant and parent liaison. They are plowing
through the research every day, they live in an autism lab, and they
talk to all the other researcher moms every day.

They are expert medical investigators.

Take advantage of them.)

And when your members start reporting the things that they are seeing
to you, listen to them and coordinate that information.

Bottom up, bottom up, bottom up.

7. What ever you do, you better do it with the doctors we already
trust.

8. What ever you do, go where the results are. Your work towards
recovering our kids should not include learning from people who have
not contributed to the recovery of a child with autism. Look for the
people who are bringing children back and find out what they are
doing.

And if you give people who still aren’t sure that there is even an
actual increase in the rate a seat at the table, you will just be
wasting our time. This is about discussion and cooperation that leads
to action, not pontificating and lecturing in order to hear yourself
talk. If they are interested in genetics or counting heads, then leave
them to their business. Their business is not the business of
treatment, and this is about treatment.

9. Whatever you do, you have to offer total and complete transparency
about everything.

10. And whatever you do, please understand, you have to do it fast.

With our autistic children, we have a window of time, starting when
their injury happens, to heal them. That clock starts the minute we
get a diagnosis and we work like madmen to heal our children before
that window begins to close.

Now you are in our shoes. You have been given the diagnosis, that
parents were right and that you have lost them. You have a window of
opportunity to heal that broken relationship before that window starts
to come down hard and fast.

I hope you understand that you have to work smart, work quick and work
from our organizational model, not yours, to keep that window from
slamming shut on you.

And I hope you understand that the window will start falling hard and
fast on June 4th.

Because if you are not with us in Washington, we will know that what
you have done this week is bull****.

UPDATE: Katie Wright comments:

"It was great that the AAP finally showed to a DAN! conference. Jenny
McCarthy had to shame them into it, but it is good they came. Dr.
Cooper did not just walk in and out he sat through several
presentations over three days. I told Dr. Cooper that the AAP needs to
get up to speed- NOW. There is no time to waste, they need to send
TEAMS of physicians to DAN! and Autism One. If they want to start
earning the respect, rather than the ire of the parent community, the
AAP should start booking those hotel rooms in Chicago now. They can
also make inexpensive and easy changes by updating the website so
their autism information can reflect 2008, not 1998. The AAP has much
to prove to our families, let's hope they take on this challenge."

Posted by Ginger Taylor, M.S. at 11:43 AM
  #3  
Old April 21st 08, 04:42 AM posted to alt.support.breast-implant,misc.health.alternative,misc.kids.health
David Wright
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Posts: 718
Default The American Academy of Pediatrics Shows Up in Autism Treatment

In article ,
Greegor wrote:
http://adventuresinautism.blogspot.c...-shows-up.html

Monday, April 07, 2008
The American Academy of Pediatrics Shows Up in Autism Treatment


Are they ready to announce that vaccines are the big trigger? I don't
think so. I would be surprised if they were ready to do that yet.


So would I, considering that it's not true.

-- David Wright :: alphabeta at copper.net
These are my opinions only, but they're almost always correct.
"There are two kinds of Republicans: millionaires and suckers."
-- John Dolan



 




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