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Baby's heart defect
Hi, I have a question for a friend of mine who's just had a baby with the
'hole-in-the-heart' defect. They are now home, with baby being tube-fed because of difficulty swallowing and breathing at the same time. Is there any precedent for cup feeding heart defect babies? Is there any info or advice anyone could give, or that anyone knows of, that could help her? Thanks in advance |
#2
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Baby's heart defect
"meee" wrote in message ... Hi, I have a question for a friend of mine who's just had a baby with the 'hole-in-the-heart' defect. They are now home, with baby being tube-fed because of difficulty swallowing and breathing at the same time. Is there any precedent for cup feeding heart defect babies? Is there any info or advice anyone could give, or that anyone knows of, that could help her? Thanks in advance I've no direct experience myself of hole in the heart but one of our twins had feeding problems early on. He didn't eat enough and we had to feed him twice as frequently... Did the docs say she can try regular feeding as well? I think I'd ask the doc if that's ok - just to head off problems later when they come to remove the tube. What I mean is.. perhaps she could bottle/breast feed a little with the balance going in via the tube. Otherwise I can imagine problems getting the baby to feed normally when the tube comes out. If she breast feeds it might be a problem working out how much more to give by the tube? I don't know. Best ask the docs for advice. Google finds several references that suggest babies with a 'hole-in-the-heart' tire very easily while feeding - I imagine it's not unlike an adult trying to eat when they have a really bad cold and blocked nose (you can't breath and eat at the same time). Perhaps they will remove the feeding tube in a few weeks when it's clear the baby is gaining weight ok. Small extract.. http://www.ohsu.edu/heart/articles/reller01.htm VSDs-hole(s) in the wall between the pumping chambers - cause few symptoms at birth, but within several weeks, infants with larger defects often "fail to thrive." They suffer from poor feeding, slow weight gain and have rapid breathing. Large ventricular defects require surgery, but VSDs tend to become smaller with age. Smaller defects, although they cause a heart murmur (an abnormal heart sound), typically do not cause symptoms, and the infant grows and develops normally. Almost half of babies born with this condition may have the holes close on their own in their first few years. http://your-doctor.com/healthinfocen...enitalhrt.html In infants symptoms may include failure to grow and gain weight. These infants usually tire easily when feeding and are not as active as healthy infants |
#3
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Baby's heart defect
"CWatters" wrote in message ... "meee" wrote in message ... Hi, I have a question for a friend of mine who's just had a baby with the 'hole-in-the-heart' defect. They are now home, with baby being tube-fed because of difficulty swallowing and breathing at the same time. Is there any precedent for cup feeding heart defect babies? Is there any info or advice anyone could give, or that anyone knows of, that could help her? Thanks in advance I've no direct experience myself of hole in the heart but one of our twins had feeding problems early on. He didn't eat enough and we had to feed him twice as frequently... Did the docs say she can try regular feeding as well? I think I'd ask the doc if that's ok - just to head off problems later when they come to remove the tube. What I mean is.. perhaps she could bottle/breast feed a little with the balance going in via the tube. Otherwise I can imagine problems getting the baby to feed normally when the tube comes out. If she breast feeds it might be a problem working out how much more to give by the tube? I don't know. Best ask the docs for advice. Google finds several references that suggest babies with a 'hole-in-the-heart' tire very easily while feeding - I imagine it's not unlike an adult trying to eat when they have a really bad cold and blocked nose (you can't breath and eat at the same time). Perhaps they will remove the feeding tube in a few weeks when it's clear the baby is gaining weight ok. Small extract.. http://www.ohsu.edu/heart/articles/reller01.htm VSDs-hole(s) in the wall between the pumping chambers - cause few symptoms at birth, but within several weeks, infants with larger defects often "fail to thrive." They suffer from poor feeding, slow weight gain and have rapid breathing. Large ventricular defects require surgery, but VSDs tend to become smaller with age. Smaller defects, although they cause a heart murmur (an abnormal heart sound), typically do not cause symptoms, and the infant grows and develops normally. Almost half of babies born with this condition may have the holes close on their own in their first few years. http://your-doctor.com/healthinfocen...enitalhrt.html In infants symptoms may include failure to grow and gain weight. These infants usually tire easily when feeding and are not as active as healthy infants Thanks for all this info. So far she's been told by the doctors to tube feed, but hasn't had a chance yet to ask specifically about cup feeding. She more wanted me to see if I could find any other parents who'd successfully cup fed. She's mainly concerned about getting more food into him and trying to encourage him to swallow, so he can be as normal as possible. So far she's continuing tube feeding as advised by doctors, but is looking at other options for him. Thanks so much for the links and info, I'll pass them on to her. |
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